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Protocol for Interviewers: Ensuring Equality and Respect for People with Disabilities

This protocol provides guidelines for interviewers to promote equality, respect, and inclusion when interacting with individuals experiencing disability. It addresses ethical issues, such as informed consent and confidentiality, and provides practical tips for meeting and interviewing people with hearing, speech and language, intellectual, and mental health disabilities. The protocol was developed and is being revised by the NDA, with input from disabled experts.

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Protocol for Interviewers: Ensuring Equality and Respect for People with Disabilities

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  1. Protocol for Interviewers Washington Group on Disability Statistics5th MeetingRio de Janeiro, September 2005 Dr Anne Good

  2. Underlying Principles Equality Respect Inclusion Voice

  3. Understanding Disability Complex concept Social model Group experiencing exclusion and discrimination Non homogenous

  4. Ethical Issues: specific challenges Informed consent Privacy Confidentiality Avoidance of Harm Well being

  5. Meeting people with disabilities • Ordinary courtesy • Do not operate from assumptions/stereotypes • Treat adults as adults • Speak directly to people with disabilities (‘does he take sugar?’ syndrome) • Be aware of individuality as well as commonality

  6. Examples of specific impairment based groups • Hearing disabilities • Speech and Language disabilities • Intellectual disabilities • Mental Health disabilities

  7. Hearing Disabilties Meeting People: • Establish preferred method of communication • Ensure appropriate supports are available Interviewing: • Face the person when speaking • Use visual cues • Speak directly to person when using interpretor

  8. Speech and Language Disabilities Meeting • Establish preferred method of communication • Ensure necessary supports are available Interviewing • Allow ample time for person to articulate what they want to say • Do not finish sentences for the person • If you do not understand, say so, do not pretend

  9. Intellectual Impairments • Meeting the person • Inform yourself as to their specific condition • Allow time to ensure that person understands you • Interviewing • Confirm informed consent carefully • Use straightforward language • Explain specialised terms clearly • Ask if the person would like to have someone with them

  10. Mental Health Disabilities Meeting the person Be aware of your own assumptiuons and attitudes Remember that mental health difficulties are very prevalent Try to put person at their ease Interviewing Take account of side effects of medication and of general low energy Keep interview short Take breaks if necessary

  11. The Protocols • Developed and used during NDA pilot 2003-2004 • Lead researcher on this aspect of project is disabled expert • Being revised currently in preparation for full NDS • NDA welcome comments/suggestions • Part of suite of guidelines and can be read in conjunction with the others: • Ask Me guidelines on consultation exercises with people with disabilities • Guildines on including people with disabilities in research • Ethical guidelines for disability research • Guidelines for researching with children with disabilities • (available on www.nda.ie)

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