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BRCAN

Join our moderated Facebook community for breast cancer advocates in Wisconsin and beyond. Stay informed, find research opportunities, and connect with researchers and fellow community members.

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BRCAN

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  1. BRCAN March 13, 2019 Robin Douthitt

  2. UW Carbone Cancer Center oncologist Mark Burkard

  3. WHERE AM I ? • UW SCHOOL OF MEDICINE AND PUBLIC HEALTH • CARBONE CANCER CLINIC • BREAST HEALTH CENTER • INSTITUTE FOR CLINICAL AND TRANSLTIONAL RESEARCH • UW HEALTH (HOSPITAL)

  4. Robert Golden dean of the UW School of Medicine and Public Health

  5. Lee G Wilke, Director UW Health Breast Center CCC

  6. Howard Bailey, Director of the University of Wisconsin Carbone Cancer Center (UWCCC)

  7. Alan S. Kaplan, Chief Executive Officer, UW Health

  8. Jay RobaidekVice President, Chief of Staff UW Health

  9. Institute for Clinical and Translational Research (ICTR)Director Allan Brasier UW School of Medicine and Public HealthResponsible for transferring Medical Institutional Review Board (IRB) authority to UW Graduate School under leadership of new UW Asso Vice Chancellor for Research

  10. Marje Murray, Director of Strategic Partnerships and Stakeholder Engagement ICTR

  11. Rebecca Marnocha, Regulatory Knowledge and Suport, Clinical Research ServicesICTR Worked with Dr. Burkard to solve remnant tissue issues!

  12. OPPORTUNITIES FOR BRCAN IMPACT • Create our own moderated Facebook account where we can create a community of breast cancer advocates in Wisconsin and beyond. • Communicate our activities and what we have learned to broader community • Give access to CCC breast cancer researchers to post information about their work. Potentially recruit members of community for research studies. • Post vetted links to translational breast cancer articles and related other Facebook pages. • Special meeting for those interested to meet with Marje Murray to work on recruitment for “All of Us”

  13. Wisconsin researchers awarded $5.3 million for NIH precision medicine researchPosted on November 9, 2017

  14. OPPORTUNITIES FOR BRCAN IMPACT • Create our own moderated Facebook account where we can create a community of breast cancer advocates in Wisconsin and beyond. • Communicate our activities and what we have learned to broader community • Give access to CCC breast cancer researchers to post information about their work. Potentially recruit members of community for research studies. • Post vetted links to translational breast cancer articles and related other Facebook pages. • Special meeting for those interested to meet with Marje Murray to work on recruitment for “All of Us” • Participate in focus group meetings with Dr. Burkard and Rebecca Marnocha (ICTR) to develop Informed Patient Consent content and modalities e.g. MyChart, correspondence, video (U Tube etc)

  15. BRCAN VOLUNTEERS • Deb Tobin tobin.Deborah@gmail.com 608 235 4053 • Terese Tyler wityler@outlook.com 608 719 8359 • Julie Lombardo jlombardo@capitolphysicaltherapy.com 6082123916 • Nancy Thorne Cahill ntcahill@yahoo.co, 6088525148

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