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Understanding dementia among UK Bangladeshi. PhD Student: Muhammad Hossain Supervisors: Dr Ann Dewey, Dr Yohai Hakak, Dr Karan Jutlla. NICE clinical guideline 42. Outline of talk. Aims and objectives Research questions Background and context Gap in the literature Research design
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Understanding dementia among UK Bangladeshi PhD Student: Muhammad Hossain Supervisors: Dr Ann Dewey, Dr Yohai Hakak, Dr Karan Jutlla NICE clinical guideline 42
Outline of talk • Aims and objectives • Research questions • Background and context • Gap in the literature • Research design • Qualitative synthesis • Semi-structured in-depth interviews • Progress so far • Things still to do
Aims and objectives • Part one: • Qualitative research synthesis • Explore South Asian people’s experience • Explore informal and formal carers views Part two: • Explore Bangladeshi people’s experience • Explore the cultural and religious issues
Research questions • What are the understanding of dementia among Bangladeshi people with and without dementia? • Attitudes among families and carers • Barriers to diagnosis • Barriers to communication • Improving practice
Background and context Number of people with dementia in the UK At present 821,884people By 2025 1 million people By 2051 1,735,087 people • 11, 000 to 15, 000 estimated people with dementia from BME groups • No estimated numbers from South Asian groups • Predicted the numbers will rise quickly
Gap in the literature • More US based studies than UK • A hidden problem for a hidden population • Few UK based studies among South Asian • Generalization • No studies among Bangladeshis
Research design • Part one overview: • Meta-aggregation: A pragmatic approach • Comprehensive search of the literature • QARI appraisal tool • Gaps in the literature • Lines of action
Research design • Part one overview (continued): • Focussed research question using the acronym PICO • Develop Search Strategy • Searching for the Evidence • Selecting Studies • Critically Appraising Studies • Data Extraction • Data Synthesis
Research design(continued) • Part two overview: • Primary research- Qualitative research • Data collection: Semi-structure interviews • Sampling • Recruitment • Data analysis
Progress so far • Review protocol written • Comprehensive literature search • EPPI-Reviewer 4 database setup • Made contacts with potential collaborators • Presented research poster in several seminars and conferences including ESRC in the UK
Things still to do • Ethics approval • Qualitative interviewing training
If you would like to take part, please contact us: • Muhammad.Hossain@port.ac.uk • Tel: +44 (0)23 9284 4461 This Project will finish by 2016. • Thank you!