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HELLP-syndrome Foundation

HELLP-syndrome Foundation. The Netherlands. Why :. Syndrome and symptoms not recognized as such by pregnant women Because of the few cases not always recognized ( on time) by medical professionals. Why:. - 180.000 pregancies in the Netherlands per year

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HELLP-syndrome Foundation

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  1. HELLP-syndrome Foundation The Netherlands

  2. Why: • Syndrome and symptomsnotrecognized as suchby pregnant women • Because of the few cases notalwaysrecognized (on time) bymedical professionals

  3. Why: - 180.000 pregancies in the Netherlands per year • of these 3000 develop hypertensive symptoms • 300 of those have a serious HELLP/PE condition

  4. How: Support (groups) -Information -Representation

  5. Support Theme days Everyyear the HELLP foundation organises a themeday, themesdiffereveryyear, withvariousmedical speakers.

  6. Support Phone service Volunteers are alwaysready to lend a listeningear and offer support.

  7. Support Workshops The HELLP foundation offers various workshops whichtake place in smallgroups, a comfortable environment and with professional guidance

  8. Support Youcanfind the HELLP foundation on Hyves (NL) Facebook Twitter LinkedIn Social media

  9. Support Contact group A closed forum for support and sharingexperienceswithothersurvivors

  10. Information Magazine Inzicht 3x per year

  11. Information Books “Geen Roze Wolk” “HELLP en hoe verder”

  12. Information Free brochures for every patient and hospital in The Netherlands

  13. Information Website Find all relevant information, twitternews, FAQ, advise, support, and contact information in one place

  14. Information Note pad Distributed to medical professionals Because: Correct information shortens patient delay

  15. Information Bookmarks Freelydistributed in lamaze classes and to otherorganisations

  16. Representation Stand The HELLP foundation takes part in numerous medicalconventions and events

  17. Representation • Participant in focus and feedback groups • Involved in development of newguidelines • Cooperation with KNOV and NVOG • Coorperationwith variouspatient organisations and support groups

  18. HELLP-syndrome Foundation The Netherlands More information: www.hellp.nl

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