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Community Task Force on Oral Health Needs of People with Developmental Disabilities

Community Task Force on Oral Health Needs of People with Developmental Disabilities. KEY FINDINGS. Workgroup Leaders. Demographics: Who is Receiving What from Whom ? – Ann Costello and Brian Klafehn Consumer Perceptions and Satisfaction – Lenora Colaruotolo

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Community Task Force on Oral Health Needs of People with Developmental Disabilities

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  1. Community Task Force on Oral Health Needs of People with Developmental Disabilities KEY FINDINGS

  2. Workgroup Leaders • Demographics: Who is Receiving What from Whom? – Ann Costello and Brian Klafehn • Consumer Perceptions and Satisfaction – Lenora Colaruotolo • Provider Experiences and Expectations – Lisa DeLucia • Current and Unfolding Policy – Rich Speisman • Model IDD Oral Health Care Programs – Maricelle Abayon. • Facilitator – Larry Belle

  3. Demographics: Who is ReceivingWhat from Whom? • FLDDSO -9,300 individuals in 2012 - Monroe, Wayne, Ontario, Livingston, Orleans. • 12,000 in the 11 county Finger Lakes region. • Monroe County (55%); with 40% between the ages of 21-44 years; and 35% living in some type of certified residence. • EIOH, RGH, Anthony Jordon, CP Rochester and FLDDO Dental Clinic - 2,786 patients (2011)-Wait time -ambulatory <6 months, OR >12 months. • <17% private DDS see Medicaid.

  4. Demographics: Who is ReceivingWhat from Whom? • Development of a standard patient classification system to be used by the community-based clinics as well as private practice dentists. • Clarify the actual number of individuals receiving dental services on an annual basis by using DOH Medicaid claims data. • Determine how many individuals are not receiving routine, preventive dental services and why? • Work collaboratively with local area hospitals to reduce wait-time for needed OR services and improve oral health to mitigate the need for OR services.

  5. Consumer Perceptions and Satisfaction • Determine areas of oral health satisfaction, perception and need. • Survey of local agencies and Focus groups of constituents.

  6. Consumer Perceptions and Satisfaction

  7. Perceptions on Oral Health Care

  8. Suggestions for Improvement • 80% of dental disease occurs in 20% of the population-the most underserved and least likely to access services and care.(NOT SAMPLED) • Patient-centered care. • Knowledgeable staff and practitioners. • Universal design. • The concerns and requests of the family members should be incorporated into any systemic design of oral health services for this population.

  9. Provider Experiences and Expectations • Surveys and Focus Groups. • 7th District Dental Society and Dental Hygiene Society, RGH and EIOH. • 151 respondents – DDS 59% (high % specialists and institutional providers), OH 41%. • Close to 70% of respondents treated individuals with IDD and feel relatively comfortable and competent doing so. • Respondents felt more competent and prepared to treat patients with mobility issues than they did with patients who had communication and behavioral limitations. • High % wanted additional training.

  10. Topics for Continuing Education

  11. Current and Unfolding Policy • Managed Care. • Fragile and ever-changing dental reimbursement picture. • Reduction or elimination of services. • Dental Accreditation. • Role of Dental Hygienists. • Inefficient and limited use of OR care. • Dental Disco Advisory Group (DDSG). • Opportunity for demonstration projects.

  12. Model IDD Oral Health Care Programs • Atlantic County Special Services School District by University of Medicine and Dentistry of New Jersey. • The Special Smiles Program – Philadelphia. • Tufts, Boston – closed. • Glassman, San Francisco.

  13. Glassman Model California • Focuses on prevention of dental diseases. • Utilizes a case management approach. • Employs a tiered delivery system. • Provides care as close as possible to where individuals with IDD disabilities live, work and go to school. • Enables hygienists to play a major role in oral health maintenance, as well as in education of family and caregivers. • Use of Tele-health. • Uses existing community health professionals in new ways. • Rewards services that will improve oral health.

  14. Website Full report and executive summary can be found on the following website: http://www.urmc.rochester.edu/dentistry/news-events.aspx

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