Self-Determination Moving Wisconsin Forward

1. Self-DeterminationMoving Wisconsin Forward A Collaborative Partnership Sponsored by The Wisconsin BPDD

2. Project Goals • Achieve transformational change in: • Self-directed supports • Community Supportive Living • Community Connections • Develop resources through collaborative partnerships and best practice determined through research and pilots to further self-directed supports, CSL, and Community Connections. • Partner with self-advocates to ensure that resources embody principles of self-determination and person centered practices.

4. 4 Key Grant Areas SDS Budget authority in Family Care – the person as the customer. Includes identification and testing of creative funding options for self-directed supports Innovative and sustainable models of Community Supported Living Innovative and sustainable models of Community connecting Self-Determination – moving beyond purchased services OR “what money can’t buy” to “creating meaningful life in a community.

5. Grant Projects CCCW Care Wisconsin Lutheran Social Services/CCCW The Management Group My Innovative Services Brown County Human Services New Horizon North

6. Community Care of Central Wisconsin Mission = Self-Determination Goal = Successful TimeBank in Wausau

8. I am ableto I would loveto I am willing to receive I would like to learn to I could use some help to give sing clean knit drive paint open rake teach write bike wash build arrange sit play enjoy hammer design sew construct assist fold cut show walk watch find hang pick up fill organize share garden type read create cook

10. One = One

11. Steering Committee Community members CCCW The Neighbors Place United Way Community Club House Unitarian Church Public School and others

12. Self-Directed Supports:Listening/Learning Sessions Care Wisconsin First

13. What we did Brought members and families together to discuss self-determination and self-directed supports. Two sessions (Madison and Waukesha) Four member self-advocates helped plan and facilitate.

14. Purposes Self-advocates and Care Wisconsin had very similar goals: Educate Make connections/share experiences Feedback for Care Wisconsin Care Wisconsin also wanted to recruit for involvement in ongoing SDS initiatives.

15. What did we learn? We all agree in the value of self-determination. Self-Directed Supports can be difficult to explain and conceptualize in the context of managed care. It’s hard to find good employees!

16. What did we learn? • People want to connect with others who self-direct. • Mentoring possibilities? • Group meetings? • Time banking principles are exciting. • Connections to community • Free exchange of time and talents

17. Connecting and Contributing to My Community

18. Overview • Create an approach to strengthen community connections by developing meaningful, inclusive and socially valued roles.

19. Steering Committee • Representation • Advocates • Local Businesses • Local School District • Local Community Associations • Local Faith Organization

20. Steering Committee • Mission:  Inspire meaningful, inclusive and socially valued roles in our community. • Vision:  Empower individuals to be connected to the community. • Values:  Community Advocacy Relationships Equality

21. Focus Group • Identified seven individuals currently receiving support who were excited to strengthen current and develop new community connections and valued social roles.

22. Trainings • Darcy Elks, a two day workshop on “Supporting People with Multiple/Severe Disabilities to Have a Meaningful Life During the Day;” • Bob Kann, Keynote Speaker at Marshfield High School Transition Night

23. Family Governed Southeast Waukesha County: • TMG/IRIS ICA Project Overview • Presented to: BPDD SDS Capacity Grant Gathering

24. TMG/IRIS ICA FGSEWC Project OverviewTwo grant Products “Direct Supporter Recruitment and Retention Resource Guide” Goal of Guide: Enhance the effectiveness, quality, and longevity of community living support relationships. Guide Contents: Information related to identifying, securing, supporting, and sustaining qualified community living support providers in a self-determined model.Growing a Family Governed Network Video “Part One: What Motivated Us”Video will capture this portion of the families’ journey, struggles, successes, and motivators.

25. TMG/IRIS ICA FGSEWC Project OverviewFamily Governed Overview • Janet Klees • Family led • Not service based • Evolving relationships • Long-term commitment • Self-advocate and family perspective Family Talking Point: “Forming a group whose purpose is to help our loved ones with a disability achieve their goals maximizing community supports while establishing an infrastructure that will outlive the primary caregivers is an evolutionary process and we appreciate TMG understanding our groups needs to evolve over time. FGSEWC started forming in May 2011 and it may take until May of 2013 to formally file our articles and bylaws. As the first group in the state to pursue such an arrangement our experiences will help other families that follow.”

26. TMG/IRIS ICA FGSEWC Project OverviewGrant Partners • FGSEWC Families • 8 families and 10 self-advocates (age 15-30+) • Janet Klees, Director of Deohaeko Family Support Network, Toronto, Canada • TMG/IRIS Consultant Agency staff collaborators • Patti Becker, Community Network Specialist • Cindy Nulph, Southeast Area Lead • IRIS Consultants and other IRIS Consultant Agency staff as needed. • Local advocate and stakeholder partners from IRIS Areas

27. TMG/IRIS ICA FGSEWC Project OverviewVideo Storyboard

28. TMG/IRIS ICA FGSEWC Project OverviewGuide Overview • Goal: To provide a resource to help individuals who are acting as the employer for their direct-care supporters • Section Topics: • Who Am I? (Personal story and vision for the future) • All About Working For Me • How I tell you what I need • What I need each day • What I don’t need each day • What you should know about my health • What we do in a crisis • What do we do in an emergency • How I pay for my resources and supports

29. TMG/IRIS ICA FGSEWC Project OverviewGrant Happenings • Regular Meetings of Group • Guide creation • Janet web-based meeting and support • Video creation • Family talking point: “Our group of 8 families includes a 15 yr. old, two 16 yr. olds, and a 17 year old. When these families become eligible for adult long-term supports, they will have knowledge about how families can work together to maximize the value of unpaid supports and natural supports. The families have a common need for personal life safety training and healthy nutrition and are working to schedule twice a month meetings for the self-advocates to increase their skills in these two areas. It is expected a sibling who has 4H experience will conduct these trainings where many can attend. A two hour orientation about how to work with DVR is also planned as five of the families are preparing to engage DVR.”

30. Transition October 30, 2013

31. Transition Trans-si-tion (tranzish’n) Process of change: a process or period in which something undergoes a change and passes from one state, stage, form, or activity to another

32. Background We will facilitate knowledge of transitioning and self-advocacy We are focused on identifying the skills, knowledge, and help individuals need to live their life We will share what we know and learn to help each other!

33. Transitions... Everyonegoes through changes You choose how you react Planning and preparing Knowing and doing what’s right for you

34. Focus Group - 6 Individuals Aged 15-18 yearsHigh School Individuals Aged 19-22Completed 4 Years High School Individuals Over Age 22 Parents/Guardians of Each Group

35. What we are interested in learning What questions you have What you have learned What help you need What has worked/what has not worked

36. Exploring Possibilities…

37. In Collaboration with… Brown County Human Services Brown County Transitions Action Council CESA 7 My Innovative Services Northeast Wisconsin Family Care District Northeast Wisconsin Technical College Learning for Independence Options for Independent Living Pulaski School District Shawano County Community Programs

38. Funded in part by Wisconsin BPDD This publication was funded by the Wisconsin Board for People with Developmental Disabilities using federal funds provided under P.L. 106-402 through a grant authorized by the U.S. Department of Health and Human Services, the Administration on Developmental Disabilities, and the Administration for Children and Families. The information reported herein was compiled pursuant to the State Plan on Developmental Disabilities. Any opinions expressed do not necessarily represent the position of the Wisconsin Board for People with Developmental Disabilities.

39. Mobile Community Teams: Pathfinders to Self-Determined Living Self-Determined Living SDS Conference October 2013

40. Our BPDD* Project It’s About Transformation: An inward transformation must produce an outward one. It is one thing to hang a few apples on a pecan tree. It is quite another to grow apples on an apple tree. The latter is a more reliable source of apples. Thus the regeneration of the apple tree, which then produces apples of itself and of natural necessity, is the best, indeed the only way to get apples. But those who claim to be apple trees without producing apples are kidding themselves. Theodore W. Jennings. *Board of People with Developmental Disabilities

41. The Purpose • Availability of Self-Determined Community Living to anyone/anywhere- • Goal is to develop a home setting with supports in areas of the state where it’s not already an option • Sustainability- • Cost comparative to other types of 24/7 support services the person could access • Replicable • Doable by people and communities that are interested in this model, but are just waiting for the right time, right people • A home in the community designed through self-directed supports up to 24/7 should be available to anyone with a disability who needs ongoing and more intensive support services in their home.

42. The Plan

43. Self-Determined Living Targets • Alternative to other types of 24/7 support services for people with disabilities • Who is providing the needed support? • What the support looks like? • Where he/she spends time during the day and how that time is structured?

44. The Outcomes

45. Partners

46. What we mean by “mobile’

47. Endless Possibilities & Key Ingredients KEY: Self-direction Customized--Individualization (to the person receiving support services) Community Connection and Full Citizenship for the person needing support

48. We need you • Are you seeking a place of your own? • Contact: New Horizons North 514 West Main Street Ashland, WI 54806 dyost@nhnorth.com • The New Horizons North Team: • Deanna Yost, Jennifer Felty, Consult 715-682-7171 ext 35 • Ann Marie Mackin 715-682-7171

49. Uniting People with Purpose Converge

50. Focus Develop a functional portal and provide outlets (some include utilization of social media through Internet usage, etc.) to assist individuals in making connections with the focus on moving away from staff-directed relationships to true self-directed relationships.