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Creating a Surveillance System to Track and Measure Consumer Demand . Tracy Orleans representing Cathy Backinger, Gary Giovino, Ann Malarcher, John Pinney (Joe Gitchell), Dawn Robbins and Susan Swartz . Purpose of Breakthrough Group. Aims were to:
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Creating a Surveillance System to Track and Measure Consumer Demand Tracy Orleans representing Cathy Backinger, Gary Giovino, Ann Malarcher, John Pinney (Joe Gitchell), Dawn Robbins and Susan Swartz
Purpose of Breakthrough Group • Aims were to: • (1) review the major gaps in current epidemiologic surveillance of quitting behaviors, treatment use, determinants (coverage, promotion, other policies) and outcomes (health/cost) of treatment use, and • (2) begin to identify feasible strategies for addressing those gaps. One strategy this group discussed was adoption of a minimum core dataset to measure quitting motivation and behavior including use of proven treatments. Another was the creation of a longitudinal database with the ability to “track the journey” beyond current annual indicators of tobacco use and cessation.
Breakthrough GroupAction Steps • Dawn Robbins drafted an excellent white paper on current surveillance of tobacco use cessation and insurance coverage. Refined and expanded, this paper is suitable for publication! • Anne Malarcher and Angela Trosclair at CDC complied a list of measures re: adult quitting behavior/treatment use from the ATS, AUTS, BRFSS, CPS-TUS, NHIS, NHANES and PRAMS and teen quitting/treatment use from the MTF, NYTS, YTS and YRBS. This effort revealed current wide variation in measures, and prospects for a core dataset, and identified the CPS as a promising surveillance tool going forward.
Breakthrough GroupAction Steps • Ann Malarcher proposed/circulated the logic model for tobacco cessation from the CDC’s Key Indicators Report as a possible framework for a surveillance system to track and measure consumer demand for and use of proven treatments. • Linda Bailey forwarded information re: the NAQC’s minimal dataset • The group discussed: • the need for a formal systematic “gaps” analysis • the creative use of pharmacy and pharmaceutical sales data • recent NCI efforts to create a national cessation surveillance system; • the formation of an ongoing NSF-funded “Tobacco Surveillance Network”; • several proposals and opportunities for a practical public/private funded longitudinal cohort study on quit attempts, treatment use/coverage and determinants and outcomes of both (e.g., Zeger & Samet; Robert West).
Key Opportunities for Innovation (1) refine and expand Dawn Robbins’ paper as a blueprint for improved surveillance (2) work with NCI and/or the NSF’s Tobacco Surveillance Network to formally analyze and report on surveillance gaps; (3) examine potential for an annual national quitting and treatment use “report card” (4) explore opportunities to design/fund a longitudinal cohort study of quitting motivation and behavior, treatment beliefs, demand, use, cost and benefits as a tool for advocacy and research; and (5) explore opportunities for funding secondary data analysis projects to the individual, product- , systems- and policy- related determinants of, interventions for, and health/economic impacts of improved treatment use. (RWJF’s SAPRP program has taken an initial modest step towards providing such funding.)
Reaching Disparate Populations • The activities described above will clarify the extent and causes of current income, education and racial/ethnic disparities in treatment use and access, and help to identify remedial interventions.