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The Burden of Stroke. . . Life After Stroke. Only around half of individuals who have experienced a stroke receive the rehabilitation to meet their needs in the first six months following discharge from hospital, falling to around one fifth in the following six monthsThree-quarters of younger individuals want to return to workA third develop depressionA third experience communication difficultiesAbout one third of people who have strokes will die as a result; many of these will not do so imm34263
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3. Life After Stroke Only around half of individuals who have experienced a stroke receive the rehabilitation to meet their needs in the first six months following discharge from hospital, falling to around one fifth in the following six months
Three-quarters of younger individuals want to return to work
A third develop depression
A third experience communication difficulties
About one third of people who have strokes will die as a result; many of these will not do so immediately, but within three months of the stroke
4. This is how people with stroke and aphasia conceptualised the current situation and how they wanted it to change:
The top of the slide the before scenario - shows that in the acute stage they do get quite a lot of help from therapies etc, but no one really helps them deal with the fact that they are going to be disabled, their lives have been turned upside down and no one can communicate with them (often least of all health and social care staff). And in the longer term, there is no help at all usually
In the after scenario at the bottom of the slide - people should get the full range of help and support they need in the early days, plus a rich menu of opportunities to move on to over the long term
This is how people with stroke and aphasia conceptualised the current situation and how they wanted it to change:
The top of the slide the before scenario - shows that in the acute stage they do get quite a lot of help from therapies etc, but no one really helps them deal with the fact that they are going to be disabled, their lives have been turned upside down and no one can communicate with them (often least of all health and social care staff). And in the longer term, there is no help at all usually
In the after scenario at the bottom of the slide - people should get the full range of help and support they need in the early days, plus a rich menu of opportunities to move on to over the long term
6. UK has Poor International Performance
10. Stroke Risk After TIA and Minor Stroke is Substantial and Immediate
11. Workforce: Key facts No nationally-recognised stroke-specialist courses or competences for nurses or AHPs
Many staff in traditional unidisciplinary roles without training in leadership and effective teamworking
12. Working Together National Consultation
Approaching 1000 responses
800 from stroke survivors or carers
National Support
13. Messages from the National Consultation Transition from hospital to home
Happy with acute care mostly but felt abandoned once back in the home
Importance of up-to-date information such as what services are available to them and where to find out about them
Many what happens next questions
Many requests for early engagement with social care
Particular issues for minority groups
14. People with communication difficulties Major issue requiring time and special attention
Give people time to understand and respond was a recurring message
Some care providers often made assumptions about individual wishes and choices
18. Vital Signs % stroke patients who spend 90% of their time in hospital in a stroke unit
% of high risk TIA patients who are treated within 24 hours
19. Vital Signs - Quarter 2 ReportingEngland
20. Vital signs - Quarter 2 reportingSHA East of England
21. Networks Support Joint Working Enhanced contact with commissioners, SHAs, Local Authorities and Voluntary Sector
Opportunities for new conversations across conventional boundaries
Different geographies have different challenges
and solutions!
22. Bridge to commissioners
Guide commissioning process
Delegated commissioning authority