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British Myology Society Second Annual Meeting September 2010 St Anne’s College, Oxford Michael Hanna MSG Beaver Hollow, 2010. 1. Specific aims UK multidisicplinary professional body Agreeing best practice and standards of care eg Diagnostic criteria Commissioning
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British Myology Society Second Annual Meeting September 2010 St Anne’s College, Oxford Michael Hanna MSG Beaver Hollow, 2010 1
Specific aims UK multidisicplinary professional body • Agreeing best practice and standards of care • eg Diagnostic criteria Commissioning • Agreeing standards of training clinical myology/ pathology • Promote translational research • Adult and paediatric networks • Promote patient registries • Promote clinical trials
BRITISH MYOLOGY SOCIETY Independent professional body of neuromuscular experts Consultant membership nm specialists Adult and paed neurologists Geneticists Pathologists Therapists (CE’s) Trainee membership Overseas membership
Key partners with the BMS MRC centre for neuromuscular disease Patient organisations MDC BPNS TREATNMD NHS- NCG coordinated network diagnostic centres for rare nm diseases
CLINICAL TRIALS UK Clinical trials development/support North and South Trial Centres UK Trial centre Network Patient Registries UK Clinical Networks Bio-stats Trial design Outcomes research Trial strategy British Myology Society/British Peripheral Nerve society/TREAT-NMD Patient Organizations and Charities
Clinical Trials Centres NEWCASTLE LONDON
Commissioned national nm services • Neuromuscular one year fellowship • National Neuromuscular Database
Nationally NHS NCG nm Centres NEWCASTLE OXFORD LONDON
NaNDa Project Management Group (PMJ) TREAT-NMD MDC BMS North Star DMD SMArtNet SMA IBM Cong MD & myopathy Clinical Dev PMG Clinical Dev PMG Clinical Dev PMG Clinical Dev PMG Clinical Networks National nm database structure CERTUS Database dev, hosting