1 / 12

Pediatric Ventricular Assist Devices: Outcomes and Complications

This meeting discusses outcomes and complications in pediatric patients with ventricular assist devices. Published manuscripts, ongoing projects, and research status will be presented.

tanyag
Download Presentation

Pediatric Ventricular Assist Devices: Outcomes and Complications

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Annual Fall MeetingNovember 13, 2016

  2. Data entry completion

  3. Published Manuscripts • Outcomes of children implanted with ventricular assist devices in the United States: First analysis of the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs) • Blume, Elizabeth D. et al. The Journal of Heart and Lung Transplantation • Adverse Events in Children Implanted with Ventricular Assist Devices in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs) • Rosenthal, D.N. et al. The Journal of Heart and Lung Transplantation • Outcomes of pediatric patients supported with continuous-flow ventricular assist devices: A report from the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs) • Rossano, Joseph W. et al. The Journal of Heart and Lung Transplantation

  4. Projects in process • Infectious Complications of Ventricular Assist Device use in Children in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support S. Auerbach Research Status: ISHLT 2015. Finalizing manuscript • Temporary Circulatory Support in Children in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support A. LortsResearch Status: ISHLT 2015 manuscript in draft • Utilization and Outcomes of Ventricular Assist Device Support in Adult Congenital Heart Disease: An analysis of the Intermacs C. VanderpluymResearch Status: ISHLT 2015 Manuscript submitted to JHLT • Pedimacsand PHIS databases to evaluate: Resource Utilization in Pediatric Patients Supported with Ventricular Assist Devices J. Rossano Research Status: Linkage in process at CHOP • Changes in Renal Function Following Left Ventricular Assist Device Placement in Pediatric Patients J. Friedland-Little Research Status: Accepted AHA 2016 • Outcomes of infections in children and young adults with ventricular assist devices S. Chen Research Status: Submitted ISHLT • PHTS-Pedimacs linkage: Sutcliffe, Research Status: Submitted ISHLT

  5. 2017 project directions • Single ventricle/ CHD • Neuro AE • PHIS $$ • Rehospitalizations/discharge • Quality of life

  6. 28 institutions have participated in writing groups 58 individual investigators

  7. How to Get Pedimacs Reports and Data • Pedimacs reports are easily accessible online as a part of the Intermacs statistical reporting • Public Statistical Report –http://intermacs.org/reports/public-statistical-reportBiannually, an updated Pedimacs Statistical Report is released including overall cohort patient and implant characteristics and outcomes such as survival estimates and competing outcomes • Quality Assurance Site Report – http://intermacs.org/reports/quarterly-site-reports Site administrators can download a site specific comparison report comparing patient and implant characteristics and outcomes at their site with the overall Pedimacs cohort on a biannual basis • Data Quality Site Report – http://intermacs.org/reports/quarterly-site-reports A snapshot of key data elements are provided to Site Administrators twice a year and are a part of the Pedimacs auditing process Coming Soon • Research SAS Datasets – http://intermacs.org/reports/research-sas-datasetsEach quarter the many forms collected in Pedimacs are checked and combined into analytical datasets suitable for research and analysis • Instantaneous Downloadable Excel Spreadsheets, Web Based Cohort Comparisons, and User Specified Outcome Analytics Who is my site administrator?

  8. Participation • Quality of Life Committee • Coordinator Council • Adjudication committee/ Adverse Events • Writing groups • International participation • Education Committee

  9. Please join us for the Intermacs 11th Annual Meeting March 3-4, 2017 Westin Peachtree Plaza 210 Peachtree Street NW Atlanta, GA 30303

More Related