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SLOV AK MYEL O M A S OCIETY PATIENT S CLUB. SITUATION AND ROLE OF PATIENT ORGANIZATION. MIROSLA V HRIANKA SLOV AK REPUBLIC. SLOV AK MYEL O M A S OCIETY. POSITION SLOV AK MYEL O M A S OCIETY is a non-profit network organization of multiple myeloma patient groups in Slovakia.
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SLOVAK MYELOMA SOCIETYPATIENTSCLUB SITUATION AND ROLE OF PATIENT ORGANIZATION MIROSLAV HRIANKASLOVAKREPUBLIC
POSITIONSLOVAK MYELOMA SOCIETYis a non-profit network organization of multiple myeloma patient groupsin Slovakia
GOALS OF PATIENTS CLUB The aim is to increase the quality of the patients’ life To help the patients not to feel alone with their problemsTo cooperate with family members and their relatives
SLOVAK MYELOMA SOCIETY LOCAL MEETING OF PATIENTS GROUP
SLOVAK MYELOMA SOCIETY PATIENTS CLUB MULTIMEDIAL EDUCATION COURSE FOR MYELOMA PATIENTS (CD-ROM)
SLOVAK MYELOMA SOCIETY PATIENTS CLUB MAIN GOALS OF CD-ROM “MYELOMA EDUCATION COURSE” TO EXPLAIN - SIMPLY, EASILY, IMAGINARY BY VISUAL PRESENTATION
MULTIPLE MYELOMA MULTIMEDIALEDUCATION COURSE MAIN ADVANTAGES • up-to-date • effectivity • accessibility • financial frugality
MULTIPLE MYELOMA MULTIMEDIALEDUCATION COURSE MULTILINGUAL VIDEO ANIMATIONS • English • German • Slovak • Czech • Spanish • Polish
REASON OF PATIENTS EDUCATION ”…none ofthe doctors have undergone chemotherapy or a transplant themselves that is why a patient is a very useful source of advice for the doctor, as thedoctor is an irreplaceable consultant for the patient in the treatment of multiple myeloma …”
SLOVAK MYELOMA SOCIETY PROJECT HUMANIZATION OFAMBULANCE AND HOSPITAL ENVIRONMENT FOR MYELOMA PATIENTS
MY STORY In between the collection of stem cells and the transplant in October I climbed with a mountain guide to the highest peak of High Tatras – Gerlach peak in Slovakia When I stood on the top at 2,655 metres I suddenly realised that I would beat the peak of my illness, namely - the transplantation I was mentally and physically prepared for it and in December I underwent my autologous transplantatiom