From evidence to blueprints for action

1. From evidence to blueprints for action Sally Witcher & Judith Midgely

2. Why do we need evidence? • Understand, learn • Influence, persuade • Predict • Communicate - articulate, visualise • Reassure, build confidence • Drive improvements to practice

3. What is evidence?

4. Evidence to action to evidence

5. SDS Evidence Explorers • Purpose: explore issues and process of coproducing evidence • Outcomes • Evidence gaps and action to plug • Value of different types of evidence • Share learning, promote improvement • Participants’ learning • Co-production partners

6. What we did & what we found • Evidence gaps • Work streams • Mental health • Human Rights Implications • BME Communities • SDS Insight

7. Evidence gaps • 2 stage process • Clusters • Framework • To organise and steer collection • Analytical tool/s

8. Evidence (gaps) framework • Strategic issues • Designing delivery • What’s happening now • Outcomes

9. Mental health work stream • Barriers include: • Stigma and self- stigma • Professional nervousness • Lack of stories and role models • Health route (not necessarily social work) • Involuntary admission= disempowering • Certain mental health problems- feels like control isn’t possible

10. The map: what we did Initial meeting Really small survey (n=4) Bring Your Own Evidence (BYOE) session NHS Lothian literature review

11. The evidence we talked about • Lived experience (user & carer) • Falkirk Mental Health Respite Vouchers Pilot • NHS Lothian SDS Pilot • IBSEN study (mental health data only) • NHS Lothian Literature review • “Self- directed support A review of the barriers and facilitators” (2011) • Scottish Government • Potential pieces of work (SRN, NHS Highland)

12. What we found… • Create accessible information, mental health and SDS. • Don’t make stigma based assumptions about people’s ability to cope and thrive with their own budget. • Develop strong stories, recovery and SDS, SDS possible. • Need to know more about what happens long term. • Need the individual’s whole story from start to finish.

13. Human Rights work stream • Contact 4 LAs to consider some of the gateways to SDS, including; • Charging • Eligibility criteria • Resource Allocation Systems • Assessment • ‘FAIR’ & ‘PANEL’ approaches to human rights analyses • Developed a set of recommendations

14. SDS: key ECHR Articles: • Article 14 = the right to enjoy all rights in the Convention without discrimination • Article 3 = the right not to be tortured or treated in an inhuman or degrading way • Article 8 = the right to respect for private and family life, home and correspondence • Article 2 = the right to life

15. SDS: key UNCRPD articles Article 19 = states must ensure that “disabled people have a right to live in the community, with the support they need and can make choices like other people do” Other relevant UNCRPD articles = Article’s 18 & 20 on mobility, 27 on employment, 28 on an adequate standard of living & income, 29 & 30 on participation in cultural, political and civic life

16. What we found • Tension between adult protection/service regulations & overly cautious approach to risks Vs HRs and empowerment, choice and control. • Familiar balance between individual rights and risk • Proportionate & consistent decision making in question • Human rights are under threat in context of cuts NOT because of SDS • Rights agenda is being eroded

17. What we recommend • Wide-ranging: • Local authorities: leadership, policy & practices, guidance, clear & transparent decision-making, appeals process • Charging: free at point of use, Commission on charging, Scottish Government to direct

18. Project Outputs • Final report – process and outcomes • Learning points • Evidence framework • Tools for collecting and analysing data • Work streams – various • Insight • Informing other developments

19. What next? • You? • What evidence do you have? • What evidence could you collect? • How could you share it? • IRISS • Pilotlight project