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Explore the journey of empowering individuals to access their health information and services through a user-centric digital platform. Learn about overcoming challenges in a multi-sided market, engaging clinicians, integrating PHR with EMR, and driving awareness on owning health information.
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Anubha Sant, MSc. CPHIMS-CA eHealth Strategy Consultant Department of Family Medicine McMaster University santa@mcmaster.ca @xanubhax
Phase 1 Legislative review
Inspiration • Indivo project from the Harvard-MIT Children’s Hospital Informatics program • 1994: Guardian Angel Manifesto • Proposed that health information software move away from complete control by doctors and hospitals and focus more on the individual
Vision • To digitally empower citizens to access their health services and control their personal health information, while being able to provide electronic support to individuals within their social network
Phase 1 Legislative review
Validation • Idea validated through focus groups • Focus groups limited to clinical service providers and general healthcare consumers (patients) • Prototype validated in clinical settings with clinicians and consumers
Phase 1 Legislative review
Phase 1 Legislative review
Designed to provide a consolidated experience to connect to multiple health service organizations Secure Messaging Data Sharing
Challenges of implementing in a multi-sided market • We’ve got a cool platform…so now what? • How do you get the first users onto the platform? • Which user-base do we focus on? Step 1: Open access to all within a controlled environment to evaluate uptake – find a niche Step 2: Replicate the niche
Challenges of implementing in a multi-sided market • Needed clinicians to be engaged to share data with patients • Need to remove technical barriers because clinicians don’t want another log-in or system to interact with Integrate PHR at data and workflow level with the EMR. Data integration done in a standards based manner through collaboration with MEDIC. Find clinical champions of patient-engaged care
Challenges of implementing in a multi-sided market • Needed people to own their health journey to engage with clinician(s) • The culture shift is on our side. More people are turning to the internet for health information. BUT many people still rely on their physicians to manage their care Find an engaged demographic Raise awareness to let citizens know that they own their health information and can own their health story
Evaluation • Mixture of qualitative and quantitative evaluation • Evaluation was primarily driven by unstructured user feedback • Clinicians (physicians, pharmacists, allied health professionals) • Researchers • General Users • Feature requests were assessed on a feasibility matrix for market success
Designed to provide a consolidated experience to connect to multiple health service organizations Appointment Booking Secure Messaging Data Sharing
What’s next? • Enhancing integrations with additional eHealth assets to provide consumers with access to siloed health information • Transition into the commercialization phase