Mental Capacity Act and Dementia

1. This workshop will look at how dementia impacts on people which may affect their capacity. Dr Ben Hicks Sandie Sims RN. BIA @mcadorset #mcaconference10 Mental Capacity Act and Dementia

2. Session Aims • Perceptions of dementia and capacity • • Six Domains of Cognition • • The Impact of Dementia on an individual person • • Technology to promote social inclusion

3. Who we are • Ageing and Dementia Research Centre at BU • Cross faculty Centre with a specialism in dementia and promoting research and practice that supports the well-being of everyone that is touched by the condition • Three key areas: • Navigation and wayfinding • Nutrition and healthy eating • Social inclusion and activity • https://research.bournemouth.ac.uk/centre/ageing-dementia-research-centre/

4. Who we are • Dorset Mental Capacity Act Team The Mental Capacity Act Team for Dorset County Council and Dorset Clinical Commissioning Group provide: Advice, consultancy and training on all aspects of the Mental Capacity Act and Deprivation of Liberty Safeguards. We aim to provide advice and support and build people’s confidence in applying the principles of the Act. mcateam@dorsetcc.gov.uk Tel: 01305 225650

5. Common Perceptions of Dementia • “ In some ways disease does not exist until we agree it does – by perceiving, naming and responding to it.” • Taken from: The Emperor of all Maladies – Dr Siddhartha Mukherjee.

6. Mentimeter Go to www.menti.com and enter 51 77 3 • What are the first 3 words that come to mind when you hear … • DEMENTIA

7. Global prevalence of dementia • Globally 47 million people living with dementia in 2015 and 850,000 in UK: • Triple by 2050 • 5% (43,000) in UK have YoD • One third preventable by lifestyle changes • No silver bullet cure • How we view dementia important for how we support people to live with it

8. Umbrella of ‘Dementia’

9. Six Domains of Cognition – Deficits or Changes?

10. The Impact of Dementia on an Individual Person

11. A different perspective

12. Social model of disability • Society disables a person with dementia • Provides environmental barriers and discursive barriers for their well-being and sense of inclusion Enables an understanding of how dementia sits within the wider social context of people’s life: remember not everyone will experience it the same (Hulko, 2009)

13. What are the environmental barriers? Physical barriers prevent ability to participate and be included

14. What are the discursive barriers? The language that we use to talk about people with dementia can disable them and impact on well-being. It can be: • Offensive • Belittling • Disempowering You look like Donald Trump That makes me sad • Language shapes the way we understand dementia and how people feel about themselves. • Multiple jeopardies • Lead people to restrict their inclusion within society

15. Human rights for inclusion • People with dementia should have the same • entitlements and human rights as everyone • You should not presume they lack the capacity • They should be included like everyone else with opportunities for: • Life-long learning • Unconditional participation • Developing meaningful relationships • Autonomy • Shift the focus from the individual to societal responsibility

16. The Virtual Experience • What did you think about it? • Has it challenged any perceptions you have of dementia? • Did it make you consider the ways you interact with people with dementia? • Do you think this might be a useful tool to include in dementia education?

17. Technology and Dementia • Vast array of technology now available to support people with dementia • Assistive Technology- medication dispensers • Information and Communication Technology- telehealth • Gaming technology*- iPads, Nintendo Wii, Microsoft Kinect, Nintendo Balance Board • Useful resource: Alzheimer’s Technology Charter, SCIE ICT report, AtDementia and Game Plan website

18. Gaming Technology • Supports in-the-moment benefits that bring enjoyment and engagement for people with dementia • Off-the-shelf gaming • iPad, Kinect, Wii and Balance Board • Available to purchase and play • No stigma • Older models cheaper

19. Gaming Groups • Provided overview of: • Technology that can be used • Games to be used • Social context • Practitioner behaviours • Collecting data to inform groups Provided opportunities for: Life-long learning Meaningful activities Mental, physical and social stimulation Form meaningful relationships- solidarity Challenge assumptions of their capabilities and of dementia

21. Barriers for use: Introducing Game Plan • Lack of knowledge of devices • Lack of knowledge/confidence in using them with people with dementia • Perception that they are expensive • Perception that people with dementia have no interest in the technology • Perception people with dementia cannot use the technology • Practitioners not want to engage them: Process Consent important • Set out to address these assumptions and develop a platform to support the use of off-the-shelf gaming technology with people with dementia

22. https://gfl.jjlabs.co.uk/

23. Thank you

24. Any Questions?

25. Thank you for coming You will be emailed an online evaluation form Your certificate will be Emailed once this is completed Conclusion