Family Run Executive director leadership Association – FREDLA

1. Family Run Executive director leadership Association – FREDLA NASMHPD Annual 2014 Commissioners Meeting July 27, 2014

2. FREDLA • Family Run Executive Director Leadership Association • Started in 2013 by 16 Statewide Family Network Directors • Mission: To empower and strengthen executive leaders of family-run organizations focused on the wellbeing of children and youth with mental health, emotional or behavioral challenges and their families. • Partner in TA Network

3. What Does FREDLA DO? • Technical assistance to system of care sites • Leadership Camp • Webinars • Diverse Family Leaders Scholarship Program • Resource bank for family organizations – topics include: personnel policies, strategic planning, salary survey, job descriptions, legal responsibilities of non-profits, marketing materials, board development,, and more • Annual meeting

4. Family-Run Organizations • Dedicated to supporting families caring for a child or youth with mental, emotional, behavioral or substance abuse needs • Governance - Board is comprised of at least 50% family members • Personnel – Executive Director and all staff members providing support are family members with “lived experience” • Promote family voice at all levels of the organization and system

5. History of Family Movement • Began in 1980’s – Federal funding for states to receive Child and Adolescent Service System (CASSP) grants required “family input into the planning and development of service systems, treatment options and individual service options.” Only 9 family organizations at the time. • 1985 - Federal support for Statewide Family Networks (SFNs) - $20,000 • 1989 – National Federation of Families started • 2000’s – Number of funded SFNs grew to 45 - $60,000 • Currently – 29 SFNs

6. Powerful Purpose • Enhances opportunities for voices of families to be heard • Creates unique and empowering support systems for families • Fosters collaboration between systems and families • Recognizes and capitalize on the gifts and talents of family members and provides appropriate tools and training for families to carry out effective work • Establishes a unified voice for families

7. 2014 Statewide Family Network Grants: Building capacity for family-run organizations

8. 2014 Survey • Statewide Family Networks have very different structures • In FY 2013, Statewide Family Networks supported or trained over 109,000 families and professionals. • Serve diverse populations including juvenile justice, substance abuse, special education and developmental disabilities, foster care, military

9. 2014 Survey of Statewide Family Networks • Statewide Family Networks have been around for a long time: • More than 20 years 10 • 11- 20 years 16 • 6-10 years 1 • 5 years or less 5

10. 2014 Survey • Total budgets for the 31 Statewide Family Networks are approximately 27.3 million dollars. 8 SFNs have budgets from 1-4 million dollars 19 SFNs have budgets ranging from $100,00 - $999,999 with an average budget of $536,420. 4 SFNs have budgets less than $70,000 and rely solely on SFN grants for funding

11. 2014 Services 100% of SFNs provide training for families 96% provide information and referral 90% provided one-to-one support to families

12. Reasons Families Contact Statewide Family Networks School related issues are the most frequent reason families contact a SFN.

13. National Issues • Sustainability • Becoming Medicaid Providers – CHCS Publication and follow-up webinars • Certification – survey of states • Accreditation • National Data Collection Project

14. FREDLA – A RESOURCE FOR STATE COMMISSIONERS • Contact: • Jane Walker • Executive Director • FREDLA • jwalker@fredla.org • 410.746.4538