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Our story is one of success which has been achieved by sheer determination to do the right thing following a catalogue of service failures. . My son is a young man of 24 who now receives a direct payment, lives in his own house, in the middle of a community of which he feels very much a part.
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Our story is one of success which has been achieved by sheer determination to do the right thing following a catalogue of service failures.
My son is a young man of 24 who now receives a direct payment, lives in his own house, in the middle of a community of which he feels very much a part
He loves going places, and especially going on the bus. A lot of the bus drivers also know him, and will greet him as he gets on
He has virtually no spoken language, but uses his own signs and photos to communicate
He is a very active, energetic young man who has physical energy to spare. Sometimes he can become very anxious.
This has resulted in some behaviours which challenge those around him.
So why did we do it? Andrew had grown up as one of the family.It was devastating when he was excluded from our local SLD school aged 14½ years.
We travelled the length and breadth of the country to find a school that would meet his needs.I was especially worried at how he’d be supported if he was homesick and sad.
It had been hard work, that I can’t deny!But I had learned that keeping him busy was key.We’d developed aCircle of a Supportfrom the age of 10, this was also key.
Aged 18 and excluded again! • No transition plan • No pathway plan • no idea of how his needs would be met by the local authority BUT...........
He had a person centered plan. It looks in detail at the things he prefers, the type of people he gets on with, and the way in which he likes to live. It really does work!
Andrew’s Essential Lifestyle Plan • What a good day is like • What a bad day is like • What makes Andrew happy? • What makes Andrew upset? • What are his important routines?
Why an individualised service? • His ELP suggested that was the only way we’d get it right • Providers failed to appreciate the importance of the ELP • So we took the money! a Direct Payment • The Circle of Support became the Trust • A huge commitment • Brokerage
Non-Negotiables and Why • Location was paramount • Relationships • Familiarity • Security • Direct payment costing • Essential to identify & include associated costs • Care plan must demonstrate how assessed needs will be met • Need to be commensurate with providers
His support team get a good induction based on his plan and further tailored training. His direct payment buys him 2:1 support and 1:1 sleep-in support at night.
The look on his face now mostly says “I am having a great time”
Amongst other things he is: • sharing the same community as his family and making friends with his neighbours. • A member of the local David Lloyd sports center • Developed a micro-enterprise collecting plastic for recycling from his local community • Volunteering - joining others in a woodland conservation project • Growing his own potatoes
But most importantly my son is getting a good and ordinary life, the outcomes couldn't be bettered.