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LLP “Life after Care”

ATHENS ASSOCIATION OF ALZHEIMER’S DISEASE AND RELATED DISORDERS LLP “Life after Care” Aggeliki Vlachogianni Areti Efthymiou. LLP “Life after Care”. Semi – structured Interview

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LLP “Life after Care”

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  1. ATHENS ASSOCIATION OF ALZHEIMER’S DISEASE AND RELATED DISORDERSLLP “Life after Care”AggelikiVlachogianniAretiEfthymiou

  2. LLP “Life after Care” Semi – structured Interview Part 1 - Explore how the person became a carer. Most significant steps and most important changes in individual biography. Part 2 – Explore the caring experience with BEI Method. Which were the most significant tasks of your caregiving experience? Could you please make a list? Part 3 – transition from the role of carer 32 former carers have participated in our research

  3. The transition from the role of carer • Which were the most difficult moment after the loss of your relative / friend / partner? • What did you do / feel / think? What did you think about other people involved? What did you want to do? What did you do? How did it end? What happened? Who or what was more helpful? • How has your life changed? How is your daily life / routine changed? • Who are the people that you meet regularly? (Design a map of his / her relations, specifying intensity and type of contacts). • Re-submit the semantic differential on prevalent emotions / behaviours referred to nowadays

  4. “Now, I have plenty of time. I can see how much time I spent for her care. I understood how fast the time was running” “Now, I feel more relaxed. I was so tired back then. I go out, I go for swimming” “Now, I am so far away from all the obligations that this disease bring together”. “I feel empty. My either half is missing. I am wandering why had happened that to me. If you have been in that position you start to care for all the people that are suffering. Now, I want to go out all the time, to gain the time I have missed”

  5. “I take care of my grandson, I do gardening. I wasn’t able to do that when I was caring for my sister” “I take care of my grandchild. My daughter is working. I couldn’t do that when I was caring for my husband” “I go twice a week to my grandchildren and I visit my sister. I invite friends to my home. I prefer it than visiting them. Time heals the pain” “I try to do voluntary work in a Dementia Center. I am a member of an NGO for children with chronic diseases and sometimes I go excursions with an aunt of mine.

  6. ATHENS ASSOCIATION OF ALZHEIMER’S DISEASE AND RELATED DISORDERS M. MOUSOUROU 89, ATHENS, GREECE, 11636 TEL. +30 210 70 13 271 kentroalz@ath.forthnet.gr www.alzheimerathens.gr

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