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EHDI Information Management

Learn about the efficient management of EHDI data and patient information to enhance services for infants with hearing loss and their families. Understand the importance of uniform state registries, national information databases, and tracking and follow-up systems. Discover how effective information management can contribute to measuring program quality and accountability.

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EHDI Information Management

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  1. EHDI Information Management Les R. Schmeltz, MS, CCC-A Iowa

  2. Looks like a simple, linear process: • Collect hospital information: • Identify hearing losses • Refer for early intervention services • Collect and report statistics

  3. EHDI Data and Patient Information Management out Then a miracle occurs Start Good work, but I think we might need just a little more detail right here.

  4. Joint Committee on Infant Hearing 2000 Position Statement • Uniform state registries and national information databases • Use of information generated

  5. Uses of Information Management: • To improve services to infants and their families • To assess the quality of screening, evaluation and intervention • To facilitate collection of data on demographics of neonatal and infant hearing loss

  6. Improving Services to Infants and Their Families • Multiple system components must be integrated • Each service provider participates • Tracking and follow-up • Monitoring of outcomes

  7. Integrating Multiple System Components • Seamless system to infants and their families • Provider participation

  8. Service Provider Participation • Hospitals and other birthing facilities • Primary care providers • Service providers • Early intervention and educational facilities

  9. Tracking and Follow-Up • Timely and accurate description of services provided to each infant • Documents recommendations for follow-up and referral to other providers • Tracking

  10. Monitoring of Outcomes • Effective information management used to promote program measurement and accountability • Factors contributing to delay in providing EHDI services • Measurement of quality indicators

  11. Effective Information Management • Capable of aggregating data • Provides evaluation data • Centralized

  12. Information Collection • Federal to state level • State to hospital & practitioner level • Hospital level

  13. JCIH Quality Benchmarks & Quality Indicators • Benchmarks • Quality Indicators • Review process

  14. CDC Pilot National Data Set • Number of live births • Number screened prior to discharge • Number screened before 1 month of age • Total number referred from initial or multiple screenings for audiologic evaluation

  15. CDC Pilot National Data Set • Number with diagnostic audiological evaluation by 3 months of age • Number of children with permanent congenital hearing loss aged 0-7

  16. CDC Pilot National Data Set • Hearing loss must be classified by type, degree and laterality • Average/median age in months of diagnosis of hearing loss • Number of infants receiving intervention by 6 months of age

  17. Handouts: • JCIH Benchmarks and Quality Indicators • CDC Data Set Items

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