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New England Regional Spinal Cord Injury Center (NERSCIC). At Boston Medical Center & Gaylord Hospital …in affiliation with Northeast Rehabilitation Hospital Overview January 17, 2007. About NERSCIC. At BMC, est. in 1955 as the first civilian SCI rehab unit in US
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New England Regional Spinal Cord Injury Center (NERSCIC) At Boston Medical Center & Gaylord Hospital …in affiliation with Northeast Rehabilitation Hospital Overview January 17, 2007
About NERSCIC • At BMC, est. in 1955 as the first civilian SCI rehab unit in US • Recently re-designated by NIDRR as 1 of 14 National Model Spinal Cord Injury Systems • BMC & Gaylord constitute NE network of care, in association w/ Northeast • Conduct socio-medical research and educational programs • More attention to rigor in research & multi-center collaborations
NERSCIC ComponentsPI: Steve WilliamsGaylord PI: Dave Rosenblum Minority Focus Research Alan Jette Research Director Clinical Svc Coordination Steve Williams Dave Rosenblum Directors Training & Dissemination Bethlyn Houlihan Director
NERSCIC Major Goals • Research focus area: Technology and Science for Health and Function • Use computer technology to measure function and to reduce secondary conditions • Clinically, develop a New England Standard of Care • Develop regional capacity for dissemination • Minority/underserved focus • Representation in research • Reduce clinical disparities • Consumer products—ex. Low literacy wording
Model System of Care • Comprehensive Services • Emergency care • Acute care • Inpatient acute rehab • Outpatient / follow-up services • Interdisciplinary team: nursing, physiatrist, PT, OT, RT, psych., social work, case mngmt • Other required services: Vocational rehabilitation education, peer mentors, psychosocial services
National SCI Database:Purpose • ~250 participants from BMC, Gaylord • Northeast Rehab in Salem, NH • To ID & evaluate trends over time in: etiology, sociodemographics, injury severity, health services delivery, treatment • To establish standards of treatment • To facilitate other research (both internal & external) • 30 new patients REQUIRED per year • NMSCIS publications
National SCI Database: Methods Two data collection instruments: • Post-discharge (“Form I”) • medical record, physiatrist • Demographics, acute care & rehab received, treatment outcomes • Phone interview @ 1 yr & every 5th year thereafter (“Form II”) • Change at Year 1, health status, psychosocial status • FIM, CHART, CHIEF, Patient Health Questionnaire • If refuse participation Registry