1 / 23

The History of AIS-DSD Support Group

The History of AIS-DSD Support Group. Charmian A. Quigley, MBBS Associate Professor of Pediatric Endocrinology Indiana University School of Medicine. Medical Advisor to AIS-DSD Support Group (USA). San Francisco, CA 20 th July, 2014. History of AIS-DSD SG.

trilby
Download Presentation

The History of AIS-DSD Support Group

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. The History of AIS-DSD Support Group Charmian A. Quigley, MBBS Associate Professor of Pediatric Endocrinology Indiana University School of Medicine Medical Advisor to AIS-DSD Support Group (USA) San Francisco, CA 20th July, 2014

  2. History of AIS-DSD SG 1950 1990 1995 2000 2005 2010 2015 1953: Morris describes "Testicular Feminization“ AKA “Morris Syndrome”

  3. Dr J Morris, 1953: “It goes without saying that it would be unwise to inform the patient of the true state of affairs . . it seems only necessary to state that childbearing is impossible.”

  4. History of AIS-DSD SG 1953: DNA discovered 1959 Chromosomes discovered 1950 1990 1995 2000 2005 2010 2015 1953: Morris describes "Testicular Feminization“ AKA “Morris Syndrome” 1988: Margaret Simmonds starts AISSG (UK)

  5. 1988: Androgen Insensitivity Support Group (UK) • Established by Margaret Simmonds

  6. History of AIS-DSD SG 1953: DNA discovered 1959 Chromosomes discovered 1993: Bo Laurent Founds ISNA 1950 1990 1995 2000 2005 2010 2015 1953: Morris describes "Testicular Feminization“ AKA “Morris Syndrome” 1988: Margaret Simmonds starts AISSG (UK)

  7. 1993: Intersex Society of North America “Cheryl Chase”

  8. History of AIS-DSD SG 1953: DNA discovered 1995: Sheri Groveman attends AISSG meetings in UK 1995: Sheri Groveman starts AISSG-USA 1959 Chromosomes discovered 1993: Bo Laurent Founds ISNA 1950 1990 1995 2000 2005 2010 2015 1953: Morris describes "Testicular Feminization“ AKA “Morris Syndrome” 1988: Margaret Simmonds starts AISSG (UK)

  9. Sherri GrovemanMorris: founder of AIS-SG • Sherri shared the incredible thrill she experienced “to realize there was support after feeling alone on the planet for 36 years.” • Sherri: “It is the culmination of my life’s dream to have others with whom to share my thoughts and feelings about having AIS.”

  10. History of AIS-DSD SG 1953: DNA discovered 1995: Sheri Groveman attends AISSG meetings in UK 1995: Sheri Groveman starts AISSG-USA 1959 Chromosomes discovered 1993: Bo Laurent Founds ISNA 1950 1990 1995 2000 2005 2010 2015 1953: Morris describes "Testicular Feminization“ AKA “Morris Syndrome” Sept 7 1996: 1st meeting of AISSG in NYC 1988: Margaret Simmonds starts AISSG (UK)

  11. September 7, 1996: AISSG Inaugural Meeting in NYC

  12. Created by webmaven Cindy Stone History of AIS-DSD SG • Annual meetings • 1996 - New York • 1997 – San Diego • 1998 – Chicago • 1999 – Seattle

  13. Why the Orchid?

  14. Created by webmaven Cindy Stone History of AIS-DSD SG • Annual meetings • 1996 - New York • 1997 – San Diego • 1998 – Chicago • 1999 – Seattle • 2000 – Boston • 2001 – Denver • 2002 – St Louis • 2003 – Toronto

  15. Created by webmaven Cindy Stone History of AIS-DSD SG • 2011 – Seattle • 2012 – Oklahoma City • 2013 – Boston • 2014 - San Francisco (#19) • Annual meetings • 1996 - New York • 1997 – San Diego • 1998 – Chicago • 1999 – Seattle • 2000 – Boston • 2001 – Denver • 2002 – St Louis • 2003 – Toronto • 2004 – Madison • 2005 – Palo Alto • 2006 – Bloomington • 2007 – Raleigh • 2008 – Chicago • 2009 – Dallas • 2010 - Nashville

  16. History of AIS-DSD SG ~2001: AISSG listerv begins 1953: DNA discovered 2000: Arlene Baratz attends her 1st meeting 1995: Sheri Groveman attends AISSG meetings in UK 2011 AISSG becomes AIS-DSD-SG-FWAF 2006 “Chicago Consensus Statement” published 2006 Teen track added to meeting program 1995: Sheri Groveman starts AISSG-USA 1959 Chromosomes discovered 2014: Beyond gender binary (all gender bathroom) 1993: Bo Laurent Founds ISNA 1997: Donna L joins Sherri in organizing AISSG 1950 1990 1995 2000 2005 2010 2015 1953: Morris describes "Testicular Feminization“ AKA “Morris Syndrome” 2004: start of parents’ email circle 2013: men’s track added to meeting program; AIS-DSD SG drops the “FWAF” part Sept 7 1996: 1st meeting of AISSG in NYC 1988: Margaret Simmonds starts AISSG (UK) 2002: Susie D becomes treasurer 2000: 501(c)(3) status achieved

  17. Changes Over Time • Membership • Website/logo • Support group name • 2011: group changes name AISDSDSGFWAF • = “Androgen Insensitivity Syndrome-Disorders of Sex Development Support Group for Women and Families” (AISDSDSGFWAF)

  18. Original Website Up to 2005 . . . I Think

  19. Created by webmaven Cindy Stone Website Logo Mid-Late 2000s

  20. Updated Website ~2011

  21. Current Website 2014

  22. THANK YOU • Jeanne Nollman • Jane Goto • Amber Jones • Georgiann Davis • Other board members • AND . . . . . .

  23. Changes Over Time • Membership • Support group name • Name used at annual meetings • and names on name badges • Website • Logo • Diversity • Balance (support/advocacy)

More Related