1 / 12

ERN skin Coordinator: Prof. Christine Bodemer (APHP - Necker Enfants Malades Hospital –

ERN skin Coordinator: Prof. Christine Bodemer (APHP - Necker Enfants Malades Hospital – Department of Dermatology - MAGEC) with the support of Fondation René Touraine – Genodermatoses & Rare Skin Disorders Network. ERN skin. Official endorsement of:

trygg
Download Presentation

ERN skin Coordinator: Prof. Christine Bodemer (APHP - Necker Enfants Malades Hospital –

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. ERN skin Coordinator: Prof. Christine Bodemer (APHP - Necker Enfants Malades Hospital – Department of Dermatology - MAGEC) with the support of Fondation René Touraine – Genodermatoses & Rare Skin Disorders Network.

  2. ERN skin Official endorsement of: European Academy of Dermatology and Venereology (EADV) European Society of Paediatric Dermatology (ESPD) European Dermatology Forum (EDF).

  3. ERN skin Rare and Undiagnosed Skin Diseases : about 600 heterogeneous and complex conditions that can be interconnected and share common management in the care and the field of research stepwise approach

  4. ERN skin ERN collaborative platform: to help the members of each ERN to work together (forum for each group, agenda, news from the ERN, etc.) CPMS (Clinical Patient Management System): discussion of complex patient cases referred to the ERN

  5. ERN-SKIN goals MARCH 2018: Conference calls of each sub-thematic and transversal group - Sub-thematic group: update guidelines at 5 years detailed list of avalaible guidelines working groups with overlapping ERNs - Transversal group: ERN-Skin training 5 year programme Strategy for developing practical training in each country Development of an e-learning section Outcome: Development of a patient satisfaction survey with e-PAG Deep Phenotyping: SPOT app development Registry: ERN-Skin registry strategy

  6. ERN-SKIN goals APRIL 23 : Executive Committee Meeting (chairs of the sub-thematic and transversal groups, Paris) JUNE 15: By this date, each health care provider representative should have updated the list of services available in their hospital, based on a template provided by the ERN-Skin General Coordination team SEPTEMBER: Conference calls of each sub-thematic and transversal group

  7. ERN-SKIN goals NOVEMBER 22: ERN-Skin Executive Committee Meeting (chairs of the sub-thematic & transversal group, Rome) NOVEMBER 23: ERN-Skin Board Meeting and sub-thematic groups (every health care provider representative, Rome) NOVEMBER 24: ERN-Skin training, Rome

More Related