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UKRDC_UKRR_Audit_25062013x.pp x

UKRDC_UKRR_Audit_25062013x.pp x. UK Renal Data Collaboration. UKRR Audit Day 25 June 2013 keith.simpson@nhs.net. UK Renal Data Collaboration. Involves Registries (UKRR & SRR) RPV Rare renal disease groups Patients Renal Association Renal units

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UKRDC_UKRR_Audit_25062013x.pp x

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  1. UKRDC_UKRR_Audit_25062013x.ppx

  2. UK Renal Data Collaboration UKRR Audit Day25 June 2013keith.simpson@nhs.net

  3. UK Renal Data Collaboration InvolvesRegistries (UKRR & SRR)RPVRare renal disease groups Patients Renal AssociationRenal units Renal IT industriesData GovernanceNHS, HSCIC, DoH, ISD

  4. Governance & Risks Guiding CoalitionMet in Edinburgh Nov 2012, 2nd Meeting soonChair Dr Afzal ChaudhryPosition paper availableRisk Register

  5. UK Renal Data Collaboration Can we develop a project that better supports what we do:Care for patients data and info for patientsResearch basic and epidemiology, traditional & novelTeach & learnRun the servicesQuality improvement units could devolve some QI to the registries prompts (Tx list), trends (infections) ...

  6. UK Renal Data Collaboration RenalUnits .

  7. UK Renal Data Collaboration RenalUnits Labs .

  8. UK Renal Data Collaboration RenalUnits Labs NHSBT OtherNational data .

  9. UK Renal Data Collaboration RenalUnits RPV Labs UKRR SRR RaDaR NHSBT BAPN OtherNational data .

  10. hard to managewasteful summarised data can’t be recovered perpetuates errors some unknown >> biaseg RRT start date & unit lost in transferinflexible…

  11. UK Renal Data Collaboration RenalUnits Patient sees~all their data RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN OtherNational data .

  12. UK Renal Data Collaboration RenalUnits Patient moves renal unit RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN OtherNational data .

  13. UK Renal Data Collaboration NHS net firewall RenalUnits RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps BAPN NHSBT OtherNational dataHES, RGOS ... other Warehouse data viewable Primary careeg drug prescription . ukrdc_it_09b 17022013

  14. UK Renal Data Collaboration Prerequisites: Use1) NHS and CHI numbers for patient id2) real time comprehensive electronic records3) national & international terminologies SNOMED CT, DM&D, eBNF, NLMC4) information standards eg FHIR from HL7 Need firm lead from RAs and CDsRelevant to clinical governance if we hope to useIT to address eg CV catheter infection

  15. Clinical terminology –SNOMED CTUK Renal Terminology CommitteeMembership and expert Guidance from Professional Terminologists from HSCIC UK Renal diagnosis subset Good links with ERA-EDTA Need good SNOMED CT interface in Renal Units(paper to be issued by HSCIC)Hospitals not encouraging use ?because paid by ICD9/10No Teaching about it in Universities, Colleges and Professional associations

  16. National Laboratory Medicine Catalogue(cross referenced to SNOMED CT)

  17. National Laboratory Medicine Catalogue(cross referenced to SNOMED CT) PTH urate, Hb

  18. UK Renal Data Collaboration Information Model Presented by Peter Nicklin, HSCIC, 7th June 2013

  19. UKRDC Data Model – big picture

  20. UKRDC Data Model – bigger picture

  21. UKRDC Data Model – some headings

  22. External Collaboration 1) UK Renal IT suppliers 2) Health and Social Care Information Centre member of renal terminology committee SNOMED CT, Drugs Medicines & Devices data model data transfer scheme advice on warehouse 3) Royal College of Pathologists & DoH NLMC 4) Senior trainee interested in participating

  23. UK Renal Data Collaboration NHS net firewall RenalUnits RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps BAPN NHSBT OtherNational dataHES, RGOS ... other Warehouse data viewable Primary careeg drug prescription . ukrdc_it_09b 17022013

  24. .

  25. UK Renal Data Collaboration Granular data Include fields for meta data … date time relative time (pre dose, post dialysis … ) sample if not obvious (venous, arterial blood, venous side of dialyser )result unit of measurement (eg Hb g/L, g/dL, mmol/L) reference range assay method (eg PTH)

  26. Lab dataNational Laboratory Medicine Catalogue? renal use and definitions supervised by the National Renal Dataset Group DrugsUse Drugs, Medicines & Devices (DM&D) list with additional data from eBNF

  27. UK Renal Data Collaboration Granular data Diagnoses and procedures – Store at highest level required by initiatorAggregate later where requiredUse SNOMED CT terms & codes (UK Renal Terminology Committee)

  28. UK Renal Data Collaboration Derived data:store raw data where possible/ practicalderive resultseg BMI, URR …

  29. .

  30. 1) data extraction method - subscribe or regular file 2) data transfer ?xml HL7 ver?, FHIR ? frequency3) Data set from members, ?relation to NRD 4) Warehouse database ? conventional relational or ‘agnostic’ flexibility – new fields granular data as used clinically meta data eg units of measurement, assay method, ref range ? use GUIDand LOINC or NLMC5) Data comms with users6) Data comms between renal eg units patient moves to new unit7) Data security, governance, primacy, provenance data ownership and access permission for anonymous data export encryption validation (pseud)anonymisation8) Clinical terminology – SNOMED CT, DM&D eBNF

  31. National Laboratory Medicine Catalogue Keen to use UKRDC in their pilotHappy to add new tests and new meta dataMay supply funds (we have provided a section for their application)

  32. UKRDC Data Model – some details 1

  33. UKRDC Data Model – some details 2

  34. XML generated from data model

  35. Things to do Decide on message structure - ? FHIRChoose and set up the warehouse hardware & softwareEnrol pilot renal units and their IT suppliersDemonstrate advantages

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