New Framework builds on key documents

1. Palliative Care Framework for Children and Young People in Scotland CYPADM (Children and Young People’s Acute Deterioration Management)and Anticipatory Care Plans Jean A. Davies, Clinical Nurse Manager Paediatrics7th December 2012

2. New Framework builds on key documents

3. Key Implementers: Scotland • Children and Young People’s Palliative Care (CYPPC) Champions, Leads and Team Members • Living and Dying Well Board Lead and Implementation team • Scottish Partnership for Palliative Care • Scottish Children and Young People’s Palliative Care Executive (SCYPPCEx) • Scottish Children and Young People’s Palliative Care Network (SCYPPCN) • Primary Care Teams and Children’s Hospices Scotland (CHAS) • Local Authorities • Scottish Ambulance Service • NHS Education Scotland (NES) • Third Sector • Children’s Hospices UK , Scotland (CHAS) and ACT now ‘together for short lives’ (TfSL) • Quarriers

4. Key implementers: NHS Ayrshire & Arran • Living and Dying Well Board Leads, Children and Young People’s Palliative Care (CYPPC) Leads, Champions and Health Team Members • Primary care and Ayrshire Hospice, Children’s Hospices • Consultant Paediatricians • Nuno Cordeiro – Community based at Rainbow House, Ayrshire Central Hospital, Irvine • Tim Adams – Acute base Crosshouse Hospital, Kilmarnock • Nurse Managers/ Nurses • Angela Cunningham - Head of Midwifery and Children’s Nursing • Jean A Davies – Clinical Nurse Manager Paediatrics • Anne Marie Bannatyne – Children’s Community Nursing Sister • Aileen Crichton – WellChild Nurse • Jackie Laughland- Community Children’s Nurse • Michael Canavan – Lead Resuscitation Officer and team • Others • Nurse Consultant, Jayne Scotland, Edinburgh (1st round Diana Monies) • New appointments pending , 3 regional posts

5. What is needed to implement the Framework in Ayrshire? • Enthusiastic and Energetic Team • Communications Strategy • Sustainability Assessment • Realistic Action Plans

6. What is CYPADM? • SCYPPEx group developed a resuscitation policy for Children and Young People • Title: Children and Young People Acute Deterioration Management (CYPADM) • Supports the effective and high quality management of acute deterioration in children and young people

7. Why CYPADM? Considers the 7Cs- Communication Control of symptoms Continuity of Care Continued learning Carersupport Care of the dying pathway • ADA (After Death Analysis) • Living and Dying Well (LDW) • LDW Building on Progress • The ACT Care Pathway ( now TfSL) • What we will do for the child

8. The CYPADM Form

9. Why implement CYPADM? To support the effective and high quality management of acute deterioration in children and young people and to ensure that the management of acute deterioration and end of life care for CYP in Scotland is of high quality and is continuously improving. CYPADM and end of life care will be: • child and young person centred, taking account of the family • safe • effective • efficient • equitable • timely

10. Children and Young People’s Palliative Care

11. Next Steps • Raise awareness of the Palliative Care Framework for Children and Young People in Scotland • Discuss the future implementation of the framework with key stakeholders: • Children, Young People, Parents and extended family • Medical and nursing colleagues • Emergency and Out of Hours departments • Scottish Ambulance service • Primary care and Hospices • Any others? • http://www.knowledge.scot.nhs.uk/child-services.aspx

12. Summary • Changes in Children and Young People’s Palliative Care • New legislation, framework, documents and direction for palliative and end of life care • Multiprofessional working together to implement • Ethical and moral dilemmas in relation to prolonging futile treatments • Help from Living and Dying Well strategic groups with ‘Next Steps’

13. Thank you for listening and any questions?