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13. ‘271 hours per month are spent on blood transfusions, chelation, other medical appointments, travel time, phoning’ Compagno LM et al Ann NY Acad Sci, 2005
Transfusion times to suite education and work
Shortening waiting time
Increasing communication time
15. A module for each specialty:
Demographics & patient data
Transfusions
Iron overload and chelation
Cardiology
Endocrinology
Hepatology
Infections
Drug reactions
22. Haemoglobin disorders are rare in the indigenous population of N Europe
Immigrants introduce a new problem which host countries are often unprepared to deal with
New immigrants often of low socio-economic level making poor use of service
23. Language and cultural barriers in counseling etc
Patients are scattered, often with poor access to expert centres
24. Summary