Independent Living Disability Rights Disability Justice

1. The Culture of Disability Independent LivingDisability RightsDisability Justice

2. A little hx  http://www.youtube.com/watch?v=fWDaRN490BI&feature=related

3. There are approximately ____ people in the U.S. with disabilities. • 43,000 • 430,000 • 43,000,000

4. The disability rights movement • asserts that people with disabilities are human beings with inalienable rights and that these rights can only be secured through collective political action. It arises out of the realization that, as historian Paul Longmore has written, "whatever the social setting and whatever the disability, people with disabilities share a common experience of social oppression." • Legal equality • Goal: Independence

5. Paul Longmore- 20th Anniv ADA- what's it all mean?  http://www.youtube.com/watch?v=2O6wQoIFz2Q

6. What is an Independent Living Center • Independent Living Centers are typically non-residential, private, non-profit, consumer-controlled, community-based organizations providing services and advocacy by and for persons with all types of disabilities. • Their goal is to assist individuals with disabilities to achieve their maximum potential within their families and communities. • Independent Living Centers serve as a strong advocacy voice on a wide range of national, state and local issues. They work to assure physical and programmatic access to housing, employment, transportation, communities, recreational facilities, and health and social services. • There are nearly 500 ILC’s in the USA

7. Nearby CILs • Center for Independence of the Disabled in NY (CIDNY) • 841 Broadway, rm 205 • NY, NY • Harlem ILC • 5-15 125th St • Queens ILC • 140-40 Queens Blvd • Staten Island CIL • 470 Castleton Ave

8. What is the Independent Living Movement?

9. The Movement • Began in Berkeley, CA • Began approx 1971 • Grassroots effort • Effort for people with disabilities to be in charge of their lives We believe there’s nothing more disabling than pity

10. Ed Roberts- Independent Living  http://www.youtube.com/watch?v=eW15TQrqBag

11. I Living • Consumer control • Peer support • Self-help • Self-determination • Equal access We believe everyone has the right to be heard

12. Individual and system advocacy • Leadership • Empowerment • Independence • Productivity • Shift away from Medical Model We believe a spinal cord injury can’t paralyze the human spirit

13. Judy Heumann  http://www.youtube.com/watch?v=uOrgK3Ym1-s

14. Diversity includes all the similarities and differences between individuals: • age, gender, race, ethnicity and culture, language, sexual orientation, • physical abilities, appearance, education and life experience, family • situation, socio/economic background, religious beliefs, and personal values • and styles.

15. Disability Justice • Goal: Social Interdependence • Points out and argues against ableism • Admits intersectionality with other identifying features- gender and sexuality, ethnicity, race, etc • Disability Justice  http://www.youtube.com/watch?v=ONxbe0j0K6s

16. Disability Awareness • Language • Words • Etiquette We believe the corporate ladder needs a wheelchair ramp

17. Ten Commandments for Communicating With People With Disabilities • Speak directly to a person with a disability rather than through a companion or sign language interpreter who may be present. • Offer to shake hands when introduced. People with limited hand use or an artificial limb can usually shake hands and offering the left hand is an acceptable greeting. • Always identify yourself and others who may be with you when meeting someone with a visual impairment. When conversing in a group, remember to identify the person to whom you are speaking. • If you offer assistance, wait until the offer is accepted. Then listen or ask for instructions. • Treat adults as adults. Address people who have disabilities by their first name only when extending that same familiarity to all others. Never patronize people in wheelchairs by patting them in the head or shoulder. • Do not lean against or hang on someone’s wheelchair. You wouldn’t want someone leaning or hanging on you.

18. Listen attentively when talking with people who have difficulty speaking and wait for them to finish. If necessary, ask short questions that require short answers, a nod or shake of the head. Never pretend to understand if you are having difficulty doing so. Instead repeat what you have understood and allow the person to respond. • Place yourself at eye level when speaking with someone in a wheelchair. • Tap a hearing-impaired person on the shoulder or wave your hand to get his or her attention. Look directly at the person and speak clearly, slowly and expressively to establish if the person can read your lips. If so, try to face the light source and keep hands, cigarettes, and food away from your mouth when speaking. • Relax. Don’t be embarrassed if you happen to use common expressions such as “see you later”, or “did you hear about this?” that seem to relate to a person’s disability.

19. Books and Movies

20. Albom, M. Tuesdays with Morrie: • Axline, V. M. Dibs in search of self. • Bauby, J. The driving bell and the butterfly. • Bombeck, E.. I want to grow hair, I want to grow up, I want to go to Boise. • Broyard, A. Intoxicated by my illness. • Callahan, J. Don't worry, he won't get far on foot. • Cooper Sinykin, S. Alison walks the wire. • Dorris, M. The broken cord. • Duncan, B. and Woods, D. (eds). Ethical issues in disability and rehabilitation. • Eiesland, N.L. (1994). The disabled God: Toward a liberatory theology of disability. • Featherstone, H. A difference in the family: Living with a disabled child. • Fiffer, S. (1999). Three quarters, two dimes and a nickel: A memoir of becoming whole. • Finger, A. Past due: A story of disability, pregnancy and birth. • Fleming, L. F. Releasing arthritis: The seven year plan. • Grandin, T. Thinking in pictures: And other reports from my life with autism. • Greenfield, J. (1972). A child called Noah. • Hockenberry, J. (1995). Moving violations. • Karp, G. Life on wheels. • Kaufman, M. Easy for you to say: Q & A's for teens living With chronic illness or disability. • Kovic, R. Born on the forth of July.

21. Lamb, W. I know this much is true. • MacCracken, M. Lovely, A Very Special Child. • Malloff, C. & Wood, S. Business & social etiquette with disabled people: A guide to getting along with persons who have impairments of vision, hearing or speech. • Milam, Lorenzo Wilson. Crip Zen, A Manual for Survival. • Monette, P. Borrowed time: An AIDS memoir. • Newborn, B. Return to Ithaca: A woman's triumph over the disabilities of a severe stroke. • Norden, M.F. The cinema of isolation: A History of physical disability in the movies. • North, C. Welcome, silence. • Oe, K. A healing family. • Papazian, S. Growing up with Joey: A mother's story of her son's disability and her family's triumph. • Pitzele, S. K. We are not alone. • Rapoport, J. L. The boy who couldn't stop washing.. • Reeve, Christopher. Still me. • Roy, T. Eleven Seconds: A Story of Tragedy, Courage, & Triumph. • Rubin, T. Jordi. • Russell, M. Beyond ramps: Disability at the end of the social contract. • Sacks, O. Seeing voices: A journey into the world of the deaf. • Sacks, O.The island of the color blind and Cycad Island.

22. Sacks, O. Awakenings. • Sacks, O. The man who mistook his wife for a hat. • Sarton, M. As We Are Now. • Seigel, B. S. Love, medicine & miracles. • Shapiro, J.P. No pity. • Simons, R. After the tears: Parents talk about raising a child with a disability. • Smith, J. Senses and sensibilities. • Stone, G. Start the conversation. • Stone, K. Awakening to disability. • Styron, W. Darkness visible: A memoir of madness. • Tavalaro, J. and Tayson, R. Look up for yes. • Thomson, R. G. Extraordinary bodies: Figuring physical disability in American culture and literature. • Werner, D. Disabled village children: a guide for community health workers, rehabilitation workers and families. • Werner, D. Where there is no doctor: A village health care handbook. • Winchester, S. (1999). The professor and the madman.

23. As Good as it Gets At First Sight Blue Skies are a Lie Born on the 4th of July Children of a Lesser God Coming Home Deconstructing Harry The Elephant Man Fuzz Gaby- A True Story Go Now Hillary and Jackie Hunchback of Notre Dame Mask Monkey Shines My Left Foot One Flew over the Cuckoos Nest The Other Side of the Mountain The Other Sister Passion Fish Patch Adams Places in the Heart The Prince of Tides Rain Man Regarding Henry Scent of a Woman See No Evil, Hear No Evil Silver Bullet Simon Birch Sybil Tell Me You Love Me, Junie Moon The Three Faces of Eve Voices The Waterdance West of Zanzibar When a Man Loves a Woman Whose Life is it Anyway?

24. Gimp Project Heidi Latsky Dancers http://www.youtube.com/watch?v=oMM7l-kPJ90&feature=fvwrel