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Patient Panel

Patient Panel. Dr Henry Penn 30/09/2013. Welcome. Housekeeping Introductions . Why are we here?. The early reasons Patient ‘stakeholder’ involvement Valid decisions on changes and improvements Improve services Testing ground for proposed changes. The later reasons.

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Patient Panel

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  1. Patient Panel Dr Henry Penn 30/09/2013

  2. Welcome • Housekeeping • Introductions

  3. Why are we here? • The early reasons • Patient ‘stakeholder’ involvement • Valid decisions on changes and improvements • Improve services • Testing ground for proposed changes

  4. The later reasons • Significant changes are afoot • Trust • PCT/CCG • NW London • Nationally

  5. Frame of Reference for Patient Panel • 1. Feedback on Arthritis Centre services • 2. Engagement with local musculoskeletal charities and patient groups • 3. Discussion/update on NWLH service developments • 4. Discussion/update on NW London service developments with regards to rheumatology

  6. What do we want from you? • 1. Frank feedback on our service. • 2. Engagement with local charities and other musculoskeletal user groups • 3. Help understanding the impact of changes from a patient view • 4. Assistance trying to influence decisions

  7. You can expect from us • To be listened to • To have changes explained • For us to try to use as little jargon as we can manage! • To take your views into consideration • To leave whenever you like!

  8. Rheumatology Specialist Activity • Inpatient – daily input into emergency care • Day unit • Biologics • Cytotoxics • Bisphosphonates • Outpatient • MTX injection • 160 new/month • 1040 FU/month • Specialist clinics • Early RA • Connective tissue disease • Metabolic bone • AnkSpond • Hypermobility • Biologics

  9. Total activity 82% have inflammatory arthritis or CTD 80% of these are on DMARDS Circa 4000 patients

  10. Other things we do • Training • Imperial undergraduates • Trainee doctors (3 registrars, 2 GPs, 4 juniors) • National lectures • Research • Rheumatoid arthritis – 3 projects • Lupus – one trial • Ankylosing spondylitis • Audit • Service improvements • National publications

  11. Changes in Brent • Brent CCG are taking bids to run all of rheumatology outpatients’ services creating the specification by a process called “competitive dialogue” • Process currently on hold due to challenges • It is possible that the work may go to one or more private firm or another hospital trust • It is unclear which doctors will run the service • It will also be predominantly community based • Our trust will bid for the work; so will Imperial and who else?

  12. What shall we do? • Make sure patient voices are heard and influence any changes. • There will be change – but let’s get engaged and make sure it is for the better.

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