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Registry Report Highlights and Insights in 2007/8 User Group 2008

Registry Report Highlights and Insights in 2007/8 User Group 2008. Overview. Registry Reports Data security Renal IT / CfH Update on sites Highlights from Report New analyses Work in progress External Collaborations. Registry Reports. Hard copies available as per usual

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Registry Report Highlights and Insights in 2007/8 User Group 2008

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  1. Registry Report Highlights and Insights in 2007/8User Group 2008

  2. Overview • Registry Reports • Data security • Renal IT / CfH • Update on sites • Highlights from Report • New analyses • Work in progress • External Collaborations

  3. Registry Reports Hard copies available as per usual CDs available to all (1st time) 2007 not printed as NDT supplement 2008 Nephron supplement

  4. Registry Reports Commissioner specific Report Transplant specific Report to BTS

  5. Data Security Issues Queries related to sending data PIAG Compliant Caldicott Guardian Encryption of data transmission PGP www.pgp.com

  6. New renal units submitting 2007 data • Manchester Royal Infirmary • Stoke • Kent • St Georges • Doncaster • Colchester

  7. Renal units recently changed systems • Cambridge (in house) • Derby (vitaldata) • Doncaster (mediqal) • Wrexham (renalware) • Swansea (vitaldata) • Liverpool • Gloucester

  8. New data items • Pre RRT • CKD 5 • Access – vascular & PD • HD individual session logging

  9. New data items • Daily dialysis • Assisted PD • Transplant waiting list status • Pr:Crt / LDL / CRP • Phosphate binders • Calcimimetics • ACE / ARBs

  10. Connecting for HealthAdditional Supply Capability & Capacity (ASCC) Myself, Es Will, Rob Higgins • supplement existing supply capacity, enable new supply to be met through a readily available approved Framework. • enable the streamlined procurement of IT systems and services from suppliers Need £2,000,000 to get on list

  11. Lot 2 - Clinical Information TechnologyService Category 2.26 – Renal ServicesApproved suppliers

  12. ASCC renal =?? • CCL • Mediqal (& Siemens) • Chi (with BT)

  13. Renal Assoc Web site • Data on standards achievement

  14. Take on rates

  15. Modalities - incident

  16. eGFR at start -by year

  17. Duration of pre RRT care

  18. Growth in prevalence

  19. Co-morbidities by ethnicity

  20. 1 year after 90 days death rateper 1,000 patient years by nation

  21. Survival from day 0 RRT 50% survival 80 – 2 yrs 70 – 3 yrs 60 – 5 yrs 50 – 10 yrs

  22. Survival and censoring Not censored censored at transplant

  23. Improvement in survivalby year of start, age < 65yrs

  24. Improvement in survivalby year of start, age 65+ yrs

  25. Improvement in URR by year

  26. Haemoglobin in incident patientsby year of start of RRT

  27. Percentage of patients with Hb > 10 g/dl by centre 31/12/07

  28. Variation in mean EPO dose with Hb achievement -HD only What are the interactions causing this variation? ? HD dose ? Age ? Comorbidity ????

  29. Other analyses • Phosphate • Transplantation

  30. Non -Report analyses Standards and Survival on home HD • Survival benefit of transplantation • Hb and survival by year of RRT • Pre RRT care • Daily Dialysis

  31. Median eGFR prior to RRT- by time since first renal referral

  32. Median eGFR prior to RRT-by renal unit(excludes data from late presenters)

  33. Median eGFR prior to RRT-by Diastolic BP at 6 months pre-RRT(excludes data from late presenters)

  34. Renal Data Map Atlas • Grant from Dept Health • East Midlands PHO Afzal Choudry

  35. Registry research funded by bequest • 3 Registrars studying for higher degrees (fees fully funded by bequest)

  36. Other activities • Dr from Hungary on 3 month ERA grant • EU grant on data standardisation • ERA studies

  37. This is your Registrywhat would you like us to do? Thanks for all your hard work

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