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care.data Hearing your views. Cleveland LMC. 15 July 2014. What is care.data?. Programme extending the data captured nationally to encompass all NHS-funded care and linking data sets to describe patient pathways New data sets will be collected (e.g. GP data )
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care.dataHearing your views Cleveland LMC 15 July 2014
What is care.data? • Programme extending the data captured nationally to encompass all NHS-funded care and linking data sets to describe patient pathways • New data sets will be collected (e.g. GP data) • Existing data sets will be linked (e.g. HES / MHMDS) • Used for planning, monitoring and research (secondary uses) NOT for clinical (direct) care • Key stakeholders: General Practice and Public • Consultation and engagement phase - NOW • Planned pathfinder data extraction from GP practices
Better information means better care Describing:patterns of healthcare activity over time Predicting:models that determine risk of adverse events Evaluating: create synthetic controls for research Comparing:health needs and use of services Auditing:to help assess the quality of care Investigating:to detect associations.
NHS | Presentation to Salford LMC | 09 June 2014 Confidentiality and Privacy NHS provider Publication GP Health and Social Care Information Centre NHS & Public Health S251 Request Research Legal Requirement Patient • Data types Identifiable Pseudonymised Anonymised • Objections GP data HSCIC data
What next? • Consultation and engagement • National engagement: NHS England and key stakeholders (patients and clinicians) • Regional engagement • LMCs, CCGs, Local Healthwatch, others • Open House events • Oversight and Governance • care.data Advisory Group • Independent Information Governance Advisory Group
Contact details: regional Janet King, Regional Head of Intelligence NHS England (North) 6NE Quarry House, Quarry Hill, Leeds, LS2 7UE e-mail: janet.king16@nhs.net phone: 0113 825 5587 / 07867 851841 Twitter: @King16Janet My portfolio includes: open data; big data; information governance, outcomes information and innovation
Contact details: national NHS England Chief Data Officer (CDO) england.cdo@nhs.net http://www.england.nhs.uk/ourwork/tsd/care-data/ http://www.england.nhs.uk/ourwork/tsd/care-data/gp-guidance/ HSCIC http://www.hscic.gov.uk/patientconf 0845 300 6016 (open 9 am to 5 pm Monday to Friday) enquiries@hscic.gov.uk(subject line ‘care.data – GP’)