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Genetic Alliance UK’s activities 2010 – 2011 Alastair Kent. Rare Disease Day Rare Disease UK report “Improving lives, optimising resources; a vision for the UK rare disease strategy.” The consultation will be released in December 2011. Projects.
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Genetic Alliance UK’s activities 2010 – 2011 Alastair Kent
Rare Disease Day • Rare Disease UK report “Improving lives, optimising resources; a vision for the UK rare disease strategy.” • The consultation will be releasedin December 2011
Projects • Projects at the cutting edge of research - R.A.P.I.D • Projects looking at access to services - Ethnicity and Access • Projects looking to empower patients - Route maps for rare conditions • Projects to directly support patients - SWAN
Policy work • The Health and Social Care Bill and reorganisation of the NHS in England • Responded to all consultations on the reorganisation • Focus on commissioning of specialised services