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Genetic Alliance UK’s activities 2010 – 2011 Alastair Kent

Genetic Alliance UK’s activities 2010 – 2011 Alastair Kent. Rare Disease Day Rare Disease UK report “Improving lives, optimising resources; a vision for the UK rare disease strategy.” The consultation will be released in December 2011. Projects.

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Genetic Alliance UK’s activities 2010 – 2011 Alastair Kent

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  1. Genetic Alliance UK’s activities 2010 – 2011 Alastair Kent

  2. Rare Disease Day • Rare Disease UK report “Improving lives, optimising resources; a vision for the UK rare disease strategy.” • The consultation will be releasedin December 2011

  3. Projects • Projects at the cutting edge of research - R.A.P.I.D • Projects looking at access to services - Ethnicity and Access • Projects looking to empower patients - Route maps for rare conditions • Projects to directly support patients - SWAN

  4. Policy work • The Health and Social Care Bill and reorganisation of the NHS in England • Responded to all consultations on the reorganisation • Focus on commissioning of specialised services

  5. Thank you

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