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G rowing O lder W ith A D isability (GOWD ) INTRODUCTORY PLENARY : International Perspectives on the Rights of Persons with Disability and Older Adults – Implications for Aging “The best national programs protecting the rights of persons aging with disabilities” Jerome Bickenbach
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Growing Older With A Disability (GOWD) INTRODUCTORY PLENARY: International Perspectives on the Rights of Persons with Disability and Older Adults – Implications for Aging “The best national programs protecting the rights of persons aging with disabilities” Jerome Bickenbach Swiss Paraplegic Research, Switzerland Toronto, June 6, 2011
2. The barriers to alliance, and removing them 1. Strangely absent alliance between disability and ageing • 3. The universality of disability • 4. National Strategy 5. Success factors for a national disability and ageing strategy
Strangely absent alliance:people with disabilities and the elderly What they have in common The common strategic value of alliance
Strangely absent alliance:people with disabilities and the elderly ‟ Disability Issues” ‟ Ageing Issues ”
Elderly: • Misconceptions about disability • Negative attitudes about disability …shared by the elderly Diagnosis People with Disabilities: • Focus on ‟ adult ” participation issues (e.g. employment) • Negative attitudes about elderly …shared by people with disabilities
Solution International Classification of Functioning, Disability and Health (ICF)Conception of DisabilityuniversalismCommon human condition, that is, ageing with and into disability
a Solution: • ICF‘s CONCEPTION OF DISABILITY Interaction between person‘shealth state and environment Ageing with and into disability Functioning domains Universal human condition
The functioning perspective on ageing The universality of disability The priority of functioning
The Universality of Disability Human condition: the grounding of the ‘normal‘ Human situation: the normality of dependence and vulnerability Human diversity: awareness of difference CONSILIENCE OF SCIENCE AND POLITICS the most robust basis for advocacy
The Priority of Functioning AGEING: processes of functioning change Time is a vector of both Enhancement Decline ALLIANCE OF DISABILITY AND AGEING the most successful basis for advocacy
Convention on the Rights of Persons with Disabilities Political significance of the Universality and Priority of Functioning and Disability
The Needed Alliance between Disability and Ageing Moving from ‟National Program” to‟National Strategy ”
National Strategy Optimally: NOT a national Disability & Ageing strategy National Policy Strategy for people TRUE MAINSTREAMING
National Strategy Practically: Multi-domain(Health, transportation, housing, employment, education, communications…)IntegratedCoherentStrategic (mainstreaming)
LeadershipFrom government, state and agency actors . . . “Learning organizations”“ …organizations where people continually expand their capacity to create the results they truly desire, where new and expansive patterns of thinking are nurtured, where collective aspiration is set free, and where people are continually learning to see the whole together. ” (Senge 1990: 3) Success Criteria for National Strategies
ParticipationOf persons with disabilities and elderly “Beyond consultation” to active involvement in implementing and monitoring the strategy“Participation building” creating opportunities to further the leadership skills of people to meaningfully participate in implementation Success Criteria for National Strategies
Legal RequirementsIn legislation creating and enforcing strategy“Manditory obligations” strategy creates top-down duties that are precise and enforceable, while maintaining flexibility“Entitlement funding” legally reinforced budget to prevent debilitating flucuation in funding Success Criteria for National Strategies
Transparency In reporting implementation progress, barriers encountered and strategies to overcome them“Accountability” for course correction and implementation best practice Success Criteria for National Strategies
Mainstreaming objectiveEnsuring that all implementation tools serve both short-term strategic goals and long-term mainstreaming objectives “Universal design policy” policy for all people, flexible to their conditione.g. transitioning for national strategy for disability & ageing in transportion to national stategy for transportation. Success Criteria for National Strategies
Monitoring mechanismTracking implementation goals and timelines by independent monitoring to ensure that goals are realistic, realizable, and progressive realized“Strategic indicators”indicators developed specifically for the integrated strategy, responsive to overall mainstreaming objective “Dedicated data sources”entrenched sources of relevant, disaggregated population data – census, longitudinal population survey, social and economic data streams Success Criteria for National Strategies
The best national strategy for protecting the rights of persons aging with disabilities