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“ A Changing Melody is the most important thing we do ”: Learning from Regional E xperiences

Delve into the rich experiences of regional Alzheimer's forums, learning about strategies, challenges, and key learnings in fostering a community of support for individuals with dementia. Discover how authentic partnerships and creative approaches can enhance quality of life and drive positive change in dementia care practices.

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“ A Changing Melody is the most important thing we do ”: Learning from Regional E xperiences

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  1. “A Changing Melody is the most important thing we do”: Learning from Regional Experiences Sherry Dupuis and Lisa Loiselle Murray Alzheimer Research and Education Program Thursday March 8, 2011 27th International Conference of Alzheimer’s Disease International

  2. A Changing Melody (ACM) Journey

  3. Purpose: working in partnership with others, to provide a safe space for persons with dementia, family members, and other care partners to come together and learn from one another about how to live a meaningful life with dementia and actively improve the quality of life of those experiencing it

  4. Purpose of the Research To examine regional forum experiences • Impetus for the forums • Supports and resources • Strategies for integrating authentic partnerships • Challenges and how they were addressed • Key learnings

  5. Method • 11 active telephone interviews with 13 regional planning committee members: • representing 10 unique forums • with diverse regional forum experiences • number of regional forums (1 to 3) had worked on • half- to full-day forums • small (18 participants) to large (100+) forums • planned alone to having several planning partners • lead by Alzheimer Chapters versus other organisations • Thematic analysis guided by the constant comparative method

  6. Becoming a Change Agent Witnessing to believing in the cause Becoming a champion Re/committing to the principles of AP Leveraging resources through existing and new partnerships Being creative in balancing financial costs with accessibility Partnering Creatively Together to Implement Change Celebrating and supporting inclusion in alternative ways Recognising, addressing and balancing diverse needs Trusting in/ following the process Building a community for ongoing support Responding proactively to, and overcoming, fears Maintaining open and honest communication Making a Difference Expanding understandings Making connections Gaining strength for the road ahead

  7. Conclusions and Implications • ACM and authentic partnerships are feasible at the regional level • Regional ACM forums are a powerful vehicle for facilitating change in dementia care • Future work: • strengthen links between all regional planning committees • find ways to nurture speakers with dementia • continue to work to reduce the protectionist attitudes/fears that limit opportunities

  8. Thank-you! For more information about MAREP, please go to our website: www.marep.uwaterloo.ca

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