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Maine CF Family Advisory Board Invites you to join us for the 2014 CF Family Education Day

Maine CF Family Advisory Board Invites you to join us for the 2014 CF Family Education Day Thursday, May 1st 8:30 AM - 2:30 PM At the Senator Inn in Augusta, Maine

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Maine CF Family Advisory Board Invites you to join us for the 2014 CF Family Education Day

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  1. Maine CF Family Advisory Board • Invites you to join us for the 2014 CF Family Education Day • Thursday, May 1st 8:30 AM - 2:30 PM • At the Senator Inn in Augusta, Maine • In accordance with the new CF Foundation Infection Prevention and Control Policy, we are asking individuals with CF to NOT attend this event. Live streaming instructions will be available on CFFamilyadvisoryboard-maine.com website and digital copies of the event will be available in the weeks to follow. • Our topics for discussion will include: • You Want Me To Do What?? The evidence behind recommended daily therapies. Colby Wyatt MD, PHD. • Living with CF Ron Sharpe. Ron Sharpe is an adult and father with CF, founder of CysticLife.org a social network, and creator of the blog RunSickboyRun.com, a positive and inspiring blog describing the life experiences of an adult with CF. • Breakout Sessions: Small group discussions on the following topics will be led by CF team members: • Navigating the insurance world • First admission to the hospital, what to expect, what to bring • Coping with a chronic disease • How to make nutrition work • CF related diabetes • Vocational rehab, planning for careers • Infection control • Questions for your pharmacist • Please choose 2 breakout sessions when you RSVP. Bring your thoughts and questions. • Representatives will have tables set up with educational materials and information on products and medications used in treating Cystic Fibrosis. • For individuals with CF unable to attend the meeting, we will be livestreaming the event. Please go to CFFamilyadvisoryboard-maine.com for instructions prior to the event • Lunch will be provided • PLEASE RSVP THE NUMBER IN YOUR PARTY ATTENDING AND PREFERENCE FOR TWO BREAKOUT SESSIONS! • For Pediatrics: RSVP to Karen Wilde @ 662-5743 • For Adults: RSVP via email to Alicia Murry at amurry@mmc.org • Directions to the Senator Inn in Augusta • The Senator Inn & Spa is located on Rt. 202W (Western Avenue) in Augusta. (207) 622-8800 • From the south: Take I-95 North. In South Portland, take Exit 52 for I-295 North. Follow I-295 North (for about 50 miles) until it once again becomes I-95 (just past the Gardiner Toll Plaza). After the Gardiner toll booth, go 7 miles to Exit 109 in Augusta. Bear right off the exit onto Western Avenue. The Senator Inn will be immediately on your right. • From the north: Take I-95 south to Exit 109A. Bear right off the exit onto Western Avenue. The Senator Inn will be immediately on your right.

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