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A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

EPF Annual General Meeting 19 May 2010. A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE. HIGHLIGHTS Annual Report 2009. Annual Report 2009. Workplan 2009– 6 Objectives Building capacity Strengthening our policy impact Harnessing the patients’ evidence

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A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

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  1. EPF Annual General Meeting 19 May 2010 A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

  2. HIGHLIGHTS Annual Report 2009

  3. Annual Report 2009 • Workplan 2009– 6 Objectives • Building capacity • Strengthening our policy impact • Harnessing the patients’ evidence • Extending our membership base • Developing communications and partnerships • Diversifying the funding base • CONSOLIDATION AND GROWTH • ECONOMIC and SOCIAL CRISIS

  4. Strategic Plan • VISION – high quality patient-centred healthcare throughout the EU • MISSION – to present a strong and united patients’ voice • 5 GOALS • Equal Access • Patient Involvement • Patients’ perspective • Sustainble patient organisations • Patient Unity

  5. Achievements 2009 EQUAL ACCESS FOR PATIENTS • Co-organisation with the European Commission • Conference: Pharmaceutical Forum- Delivering for Patients • Major policy themes • Patients Rights in Cross Border Health Care • Pharma Package • E-health / Telemedicines • Clinical Trials • Medical Devices

  6. Achievements 2009 PATIENT INVOLVEMENT • “VALUE +” on the meaningful involvement of patients in EU health projects • 3 core deliverables widely distributed, translations • Landmark conference under the Swedish Presidency, Gothenburg December • Ongoing success – DG RESEARCH • EPF representation in major EU level health Forums, Consultative Committees and Working Groups doubled in the last year

  7. Achievements 2009 PATIENTS’PERSPECTIVE • EPF Manifesto “150 Million Reasons to act” launch and campaign- massive outreach work • EPF has participated as speaker; chair or moderator in over 50 EU health meetings in 2009 – ensuring or safeguarding the patients’ perspective. • Over 120 MEPs across all EP Groupings support actively our lobbying work

  8. Achievements 2009 SUSTAINABLE PATIENTS ORGANISATIONS • Political work on core funding from the European Commission • Diversification – new EU projects, new corporate partners – pharma and IT • Continued Foundation funding • Revised funding framework and code of ethics adopted unanimously at AGM • Regional Advocacy Seminar in Sofia – 50 patient leaders from countries

  9. Achievements 2009 PATIENT UNITY • Extension of the membership to 42 Members • Policy Advisory Group –operational – key resource • Specific support for members at national level re financial crisis • Strong relationship with allies - European Cancer Patient Coalition, IAPO

  10. Conclusions • Both rewarding and challenging year for EPF • Our strength is our members – thanks to you and your investment and belief in EPF • Clear evidence of achievements of all our objectives • Raison d’ etre– policy influence Putting patients at the centre of EU health policy

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