1 / 8

Efficient & Rapid Translation of Dementia Discovery IDND-PBRN

Efficient & Rapid Translation of Dementia Discovery IDND-PBRN. Malaz Boustani, MD, MPH Chief Director of Research Indianapolis Discovery Network for Dementia Center Scientist and Assistant Professor of Medicine Indiana University center for Aging Research Scientist

xuxa
Download Presentation

Efficient & Rapid Translation of Dementia Discovery IDND-PBRN

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Efficient & Rapid Translation of Dementia DiscoveryIDND-PBRN Malaz Boustani, MD, MPH Chief Director of Research Indianapolis Discovery Network for Dementia Center Scientist and Assistant Professor of Medicine Indiana University center for Aging Research Scientist Regenstrief Institute, Inc www.indydiscoverynetwork.com

  2. Translational CycleFrom Discovery To Delivery Basic science Lab Epidemiology Clinical Observation T1 Promising Intervention System and Provider Implementation Time: 17 yrs Cost: $800 million AD recruitment rate: < 1% Clinical trial testing Post-Marketing testing T3 T2 Approved Intervention Guideline Development indydiscoverynetwork.com

  3. WHY We Need IDND • The IOM and the NIH-Roadmap • recommend urgent "Re-Engineering of the Clinical Research Enterprise." • Suggest building Practice Based Research Network with • The lens of complexity theories • The tools of information technology indydiscoverynetwork.com

  4. RI HIT Infrastrucutres • INPC • SPIN • DOC4DOC • IU-PBRN indydiscoverynetwork.com

  5. Clarian HCS PCP: Primary Care Practice MCP: Memory Care Practice HCS: Health Care System. PCP St Vincent HCS PCP PCP Wishard HCS PCP IDND-Practice Based Research Network PCP MCP PCP PCP MCP MCP PCP PCP MCP MCP PCP PCP PCP PCP Community HCS PCP PCP indydiscoverynetwork.com St Francis HCS

  6. Specific Aims • Use the foundation of the mature INPC electronic medical records system and the valuable research operation experience of the IU-PBRN to translate IDND into a practice based dementia research network capable of • Specific aim 1: Capturing reliable dementia related patients’ data such as laboratories, imaging, medical care, and health outcomes. • Specific Aim 2: Managing, summarizing, and electronically presenting captured data to various eligible researchers • Specific Aim 3: Facilitating dementia research activities by identifying potential subjects for various studies and providing a real time health outcome data such as health care utilization and dispensed medications. indydiscoverynetwork.com

  7. The Information System IDND-PBRN • Provide fast access to data about older adults with dementia, a registry index must be created. • Contain the needed elements (those identified as essential by the clinicians and the researchers), which we can call in this case a “standard dementia data set” (SDDS); • Increase completeness of data and representation of the population, multiple ways for data to enter the INPC are needed; this includes both electronic and non-electronic routes of data entry and data entry by multiple people in disparate sites of care; • Make information quickly available to support decision-making, accessible new reports or views that are most relevant to this population are needed. These data must be available to the key authorized clinical and research stakeholders; and • Automatically identify and report selected sentinel events such as hospitalization or Emergency room visit. indydiscoverynetwork.com

  8. indydiscoverynetwork.com

More Related