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Evidence-based Self-management : Translation of Knowledge into a Self-management Tool for Patients with Urinary Incontinence. Jayna M. Holroyd-Leduc, MD FRCPC Associate Professor, Division of Geriatrics University of Calgary. Disclosure Slide. No Conflicts of Interest to Disclose
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Evidence-based Self-management:Translation of Knowledge into a Self-management Tool for Patients withUrinary Incontinence Jayna M. Holroyd-Leduc, MD FRCPC Associate Professor, Division of Geriatrics University of Calgary
Disclosure Slide • No Conflicts of Interest to Disclose • Project Funding Sources • University of Toronto Dean’s Fund New Staff Competition • CIHR Operating Grant
Learning Objectives 1) To explain the concept of self-management 2) To discuss the value of evidence-based self-management tools for patients 3) To identify that knowledge can be translated for direct use by patients
Self-Management A process whereby persons function on their own behalf in the areas of: • Health promotion • Disease prevention • Disease management Is decisions and actions taken by an individual to cope with and improve a health issue Bhuyan BMC Public Health 2004; Health Canada 2006
Self-Management • Estimated 65-85% of all health care is provided by individuals or family without professional intervention Bhuyan BMC Public Health 2004 • Important component of chronic disease management • Can lower health service use by 7-17% • Low cost way of providing health care Fries Health Aff 1998; Tsai Am J Manag Care 2005
Self-Management Works through 2 mechanisms: 1) Providing information 2) Improving personal self-efficacy (the belief that by personal behaviour one may affect health) Fries Health Aff 1998
Self-Management To be effective it requires: 1) Access to relevant health information 2) Goal setting 3) Organization of resources 4) Implementation of problem-solving strategies Clark J of Aging & Health 1991
Self-Management • Role for the professional health care system to facilitate self-management • Direct translation of knowledge to patients using evidence-based self-management tools
Why Self-Management for Urinary Incontinence? • In the next 20 years >4 million Canadian women will suffer from urinary incontinence • Incontinence is associated with significant morbidity: • Poor quality of life and poor self-rated health • Depression and social isolation • Decline in ADLs
Why Self-Management for Urinary Incontinence? • Majority with incontinence report the issue is of great concern • Only 25% feel it is being adequately addressed by their health care provider • Despite available evidence-based treatment options, less than 50% of incontinent women have talked to a health care provider Tannenbaum CMAJ 2005; Holroyd-Leduc JAMA 2004
Development and Evaluation of an Evidence-based Self-management Tool for managing Urinary Incontinence Risk Factors
Development of the Tool • Funded through University of Toronto Dean’s Fund New Staff Competition • Used evidence from a systematic review to determine modifiable risk factors Holroyd-Leduc JAMA 2004 • Conducted Focus Group of Health care providers to determine risk factors to include in tool • Conducted literature review of behavioural strategies to modify chosen risk factors
Development of the Tool • Drafted the tool • Conducted 2 Patient Focus Groups to critique tool • Vetted final tool through 2 Health care Experts • Translated the tool into French
The Developed Tool • Paper-based tool • Grade 6 reading level • Requires no instruction for use
The Developed Tool • Includes 6 risk factors and associated change strategies: • Pelvic floor muscle exercises • Caffeine intake • Excess weight • Constipation • Vision and hearing problems • Smoking • Outlines how to monitor symptoms • voiding diaries pre- and post-change
Evaluation of the Tool • CIHR-funded grant • Conducted at 2 sites • University of Calgary (English) • University of Montreal (French and English) • Interrupted-time series design • 6 month study (3 pre- and 3 post-intervention) • Targeted enrolment of 100 (50 per site)
Evaluation of the Tool • Included • Women > 50 years with • Any type of incontinence • Minimum of 2 episodes/week
Evaluation of the Tool Exclusions • Received treatment within past 2 years • Started on incontinence meds within past 6 months • Related complications requiring further investigation • Cognitive impairment (MMSE <24/30) • Unable to communicate in English • Would not consent to participate
Evaluation of the Tool Hypotheses • Usage rate would be 75% or higher • Usage of the tool would result in an increase in Self-Efficacy • Improvement in Self-Efficacy would correlate with decrease in leakage episodes and improved Quality of Life
Evaluation of the Tool Primary Outcome: Successful usage of the tool (targeted > 75%) Secondary Outcomes: • Impact on self-efficacy (Geriatric Self-efficacy Index for UI) • Change in leakage episodes (Bladder diaries) • Change in Quality of Life (Urogenital Distress Inventory-6 and Incontinence Impact Questionnaire-7)
Evaluation of the Tool Analyses: Primary Outcome (Usage Rate) • Percentage and 95%CI Secondary Outcomes • Linear mixed effects modelling
Results – Self Efficacy • Geriatric Self-Efficacy Index for Urinary Incontinence • 15 items • Min score 0 – Max score 150 • Higher score = better self efficacy • Significant Improvement
Results – Quality of Life • Urogenital Distress Inventory -6 (UDI-6) • Evaluates symptom distress • Scored out of 100 • Higher score = more distress • Significant improvement
Results – Quality of Life • Incontinence Impact Questionnaire – 7 (IIQ-7) • Evaluates life impact of incontinence • Scored out 100 • Higher scores = more impact • Non-significant Improvement
Results – Impact of Self Efficacy on QoL • There was a positive relationship between Self Efficacy and Quality of Life • Improvement in Urogenital Distress (non-significant) • decrease of 0.09 (0.3-+0.01) in UDI-6 for every 1 pt increase in Self Efficacy Index • Improvement in Incontinence Impact • decrease of 0.2 (0.1-0.4) in IIQ-7 for every 1 pt increase in Self Efficacy Index
Results- Difficulty with Tool Difficulty understanding information in the tool: 10 % (6-18%) Difficulty understanding the directions in the tool: 10% (5-17%)
Bottom Line • Self-Management is an important part of health care • Evidence-based self-management tools can be effective for improving chronic diseases • Tools should be developed using • High quality evidence (e.g. systematic reviews) • Input from health care experts and end-users
Co-Investigators Sharon Straus Cara Tannenbaum Kevin Thorpe Dave Davis Heidi Schmaltz Heather Armson Research Assistants Barbara Artiuch Julie Michaud Data-base Support Jean Gagnon Special Thanks To