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HealthShack

HealthShack .info. The door is always open…. HealthShack.info. PRESENTERS: Aaron Amos, Kevin Johnson - Youth Health Ambassadors JD Rudometkin - HealthShack Project Manager Catrina Virata, MPH - UC Davis HealthShack Data Evaluation Team Tirza Cannon - HealthShack Resource Liaison.

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HealthShack

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  1. HealthShack.info The door is always open…

  2. HealthShack.info • PRESENTERS: • Aaron Amos, Kevin Johnson - Youth Health Ambassadors • JD Rudometkin - HealthShack Project Manager • Catrina Virata, MPH - UC Davis HealthShack Data Evaluation Team • Tirza Cannon - HealthShack Resource Liaison

  3. HealthShack.info • COMMUNITY PARTNERS: • WIND Youth Services • Follow Me Inc. • Linkage to Education • Sierra Health Foundation • CSU Sacramento - Division of Nursing • Youth & Young Adult Clinic at UC Davis Children's Hospital

  4. What is HealthShack.info? • HealthShack.info is a youth-controlled,interactive, online • Personal Health Information System (PHIS). Designed for • and by marginalized and homeless youth. • Web-based • Secure & HIPAA compliant • Youth-friendly tools & resources • Social networking

  5. Personal Health Information System (PHIS) • Stores health information • Provides health information and resources • Youth client portal for updates and personal use • Clinician portal for professional entry • Youth-controlled confidentiality • Private

  6. Why a PHIS is Important for Marginalized Youth • Medical records are non-existent or stored in a variety of places • Youth lack acceptable forms of identification • Gives youth a sense of stability and responsibility • Inconsistent or non-existent medical care • Lack of medical home, continuity of care • Gaps in preventive services • Youth do not have safe place to keep • important documents including medical history

  7. The Goal of HealthShack.info: • To improve the holistic health of marginalized and homeless youth by: • Facilitating the continuity of medical care • Encouraging self-empowerment • Linking youth to local, youth-approved resources

  8. How did HealthShack.info Begin? • HealthShack.info began as an expansion and adaptation of MiVIA - a patient “owned” Personal Health Record originally designed by Follow Me, Inc. for migrant agricultural workers. • Funding: • Initial - Sierra Health Foundation • Secondary - United Pacific Care • Development: • Focus Groups - assessing the needs of homeless and marginalized youth • Follow-up Interviews - how to adapt MiVIA to homeless and marginalized youth population • Recruitment of Youth Health Ambassadors

  9. WIND Youth Services • "WIND Youth Services engages youth experiencing homelessness who need safety from the streets and access to resources to help them move from crisis to healthy functioning and independence." • Serves marginalized and homeless transition aged youth in Sacramento, CA • Provides individualized case management services with the goal of assisting youth in gaining their independence

  10. Health Ambassadors Keeping a youth’s perspective in the development of HealthShack.info • Formally marginalized and previously homeless youth ages 16 to 22 • Expert advisors • Link to youth • Add “youth” legitimacy • Examples of positive change

  11. What We Do… • Recruit youth to HealthShack.info • Explore & Research Resources • Site Visits • Videos • Blogs • Participate in Community Collaborations and Events

  12. Commonly Addressed Youth Concerns • Intake is a doctor’s appointment • It’s not confidential • Don’t feel comfortable talking to the Public Health Nurses • Worried about the time an intake will take • Feel that HealthShack is “just another program that doesn’t do any good” • Don’t recognize the benefits beyond linkage to • health care.

  13. Public Health Nurses A consistent link to health services & an advocate for health needs • PHNs Assist youth with creating a HS account • Perform a comprehensive health and health-needs assessment • Enter personal data • Inform youth about confidentiality issues relating to healthcare and self-management of health records. • Identify gaps in preventive services and acute care needs • Provide health assessments, health education, and confidential health counseling on an on-going drop-in basis • Coordinate care with WIND staff, community clinics, and other local health and service resources • Advise on health related issues for HealthShack.info development • Follow-up visits with youth

  14. Clinician Patient Record

  15. Personal Information

  16. Confidentiality Controls

  17. HealthShackResources.info http://www.healthshackresources.info/

  18. HealthShackResources.info • Health Ambassadors identify & assess local resources • Presentation of resource (pick one to link to) • Write up • Videos • Pictures • Philosophy • Include “first-steps” • Determine youth-friendliness • Utilize existing assets

  19. Additional Features • Blog • Add link/screen for presentation • Physician’s Tip • Add link for presentation - show video clip? • Social Networking • Facebook • MySpace • Resume Builder • Add screen shot for presentation

  20. Ongoing Research & Evaluation Data as of 02/04/2010 Enrollment: 133 Demographics Gender Age Screened for Interview & Completed Initial & Follow - Up Interviews

  21. Ongoing Research & Evaluation Data as of 02/04/2010 Enrollment: 77 Demographics Age Gender Race

  22. Ongoing Research & Evaluation Data as of 02/04/2010 Medical Insurance Status • Medical & Health Background Medical Insurance Providers Primary Care Physician Status (PCP) * 4 clients were referred to PCP & 2 declined referral. 3 clients were not referred to PCP

  23. Ongoing Research & Evaluation Data as of 02/04/2010 Medical Services Received by Client in Past 12 Months • Medical & Health Background * 6 from PCP, 4 from a clinic, 1 from dental office, 1 from Juvenille Hall ** # of visits ranged from 1 - 3 Medical Services Received by Client in the Past * 3 clients received services in past 12 months ** 3 had dental insurance, 1 reported dental insurance - but received no services Knowledge of Immunization Records (IR)

  24. Remaining Challenges • Youth remembering login and password • Not using a wallet, no place to put ID card • Having consistent health care services to refer youth to • Educating local health care providers about HealthShack.info

  25. Future Directions • Youth and provider education and training on how to utilize HealthShack.info • Outreach to vulnerable youth prior to exiting systems (emancipating foster youth and probation youth) • Expansion to other communities • Creating an online community

  26. Acknowledgments • Jasmine Edwards & Vivek Anand • (WIND Youth Services - Health Ambassadors) • Elizabeth Miller, MD, PhD (UC Davis School of Medicine) • Ellyne Bell, Uylous Ingram, Youth Advocates (WIND Youth Services) • Diane Littlefield (Sierra Health Foundation) • Kim Whitney, Michelle Dang (Public Health Nurses) • Cynthia Solomon, Heidi Stoval (Follow Me)

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