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what’s in a name?

what’s in a name?. cavernoma. cavernous angioma. cavernous haemangioma. cerebral cavernous malformation. CCM. a cluster of abnormal blood vessels in the brain or spinal cord. discovery of cavernoma. Magnetic Resonance Imaging Scan. frequency. 1 in 600 affected asymptomatically

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what’s in a name?

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  1. what’s in a name?

  2. cavernoma cavernous angioma cavernous haemangioma cerebral cavernous malformation CCM

  3. a cluster of abnormal blood vessels in the brain or spinal cord

  4. discovery of cavernoma Magnetic Resonance Imaging Scan

  5. frequency 1 in 600 affected asymptomatically 1 in 400,000 affected symptomatically

  6. asymptomatic discovery as a result of MRI testing for other conditions symptomatic discovery as a result of haemorrhages, seizures, headaches, imbalance, slurred speech and double vision

  7. Genetic Alliance UK Facilitating Networks Projectand CA UK

  8. Guidelines for the management of cerebral cavernous malformations

  9. presented by Dr Rustam Al-Shahi Salman

  10. The 7th Annual Pathobiology of CCM Scientific Workshop Angioma Alliance Genetic Alliance UK Cavernoma Alliance UK

  11. Dolce Chantilly Hotel Friday November 18th 2011

  12. should CCM be managed that has caused only one seizure?

  13. Should CCM be managed in mothers before, during and after birth?

  14. this research would be impossible without the help of Genetic Alliance UK, Facilitating Networks

  15. Krystle Kontoh

  16. Information Booklets & Leaflet Symptomatic Cavernoma Incidental Cavernoma Genetics of Cavernoma Information Leaflet

  17. Thank You!

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