_________

1. Selected Findings From The 2010 Survey of Independent Living For New Mexicans With Disabilities _________ Anthony Cahill, Ph.D. Heidi Fredine, MPH Barbara Ibanez, MA Luciana Zilberman, MA

2. Institutional Review Board _________ This project, including project design, protocols and instruments used, was reviewed by the Human Research Review Committee (HRRC) of the Health Sciences Center of the University of New Mexico. The HRRC determined that the research is exempt from the requirements of Department of Health and Human Services (DHHS) regulations for the protection of human subjects as defined in 45CFR46.101(b) under category 2. The HRRC application number is 10-250. Funding _________ Funding for this study was provided by the New Mexico Human Services Department through the Behavioral Health Services Division. Disclaimer _________ The opinions in this presentation are those of the authors, and do not represent the official positions of the Center for Development and Disability of the University of New Mexico, the New Mexico Human Services Department or the Behavioral Health Services Division.

3. Development of the Survey _________ • Inter-agency working group: DDSD, HSD, Optum Health NM, DVR, ALTSD • Review of the literature • Multiple iterations of instrument • Institutional Review Board approval • On-line, hard copy and electronic versions of the instrument in English and Spanish were disseminated statewide through snowball sampling • Web site with instructions for facilitators in one-on-one and group settings • Overall ‘N”: 739

4. Domains Influencing Independent Living _________

5. Findings: Comparing Survey Respondents to All New Mexicans On Key Characteristics _________

6. _________ • The survey used snowball, not random, sampling: overall “N” of 739. • Thus, the results cannot be statistically generalized to the unknown population of New Mexicans with disabilities. • Survey respondents are generally representative of the population of the state on key demographic characteristics including gender, race and Hispanic identity. • This means the results are not from a skewed distribution unlike the state as a whole.

7. Gender _________ N = 694 Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau, United States Department of Commerce

8. Hispanic Identity _________ N = 673 Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau, United States Department of Commerce

9. Race _________ N = 611 Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau, United States Department of Commerce

10. Age Category _________ N = 689 Figures for New Mexico are taken from the 2009 American Community Survey, Census Bureau, United States Department of Commerce

11. Respondents by Geographic Region _________ 13.4% 23.2% 30.1% 16.9% 16.4% N = 611

12. Findings: Disability, Services And Supports _________

13. Type of Disability _________ What type of disability or health condition do you have? N (Disability/Condition) = 961

14. Services and Financial Supports _________ N (Services): 1,263 Are you currently receiving services or financial support from any of these programs or organizations?

15. Most Frequent Combinations of Services and Financial Supports _________

16. Findings: Independence in Choosing Where to Live _________

17. Choice in Deciding Where to Live _________ Which best describes who chose where you live now? N = 684

18. Satisfaction with Decision Making in Choosing Where to Live _________ How satisfied were you with the amount of decision-making you had in choosing where you live? N = 419

19. Who Was Involved in the Decision of Where To Live? _________ You said that someone else was involved in choosing the place where you live. Who else was involved? N = 411

20. Findings: What’s Important In Deciding Where To Live? _________

21. What’s Important in Deciding Where To Live? _________ How Important Is This in Deciding Where To Live? N = 655

22. Gaps In Importance and Satisfaction _________ 14.2% 10.1% 23.1% 10.5% How Important Is This in Deciding Where To Live? How Satisfied Are You With This Where You Live Now?

23. Findings: Current and Preferred Living Situations _________

24. Current Living Situations _________ Which of the following best describes your current living situation? N = 684

25. Satisfaction With Current Living Situation _________ Overall, how satisfied are you with your current living situation? N=705

26. Gaps: Current and Ideal Living Situations _________ Which of the following best describes your current living situation? Regardless of your current living situation, what would your ideal living situation be? N= 684

27. Living With Biological Family as Preferred Living Situation by Type of Disability _________ Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live with one or members of my own family… N (Disability Type) = 155

28. Living Alone as Preferred Living Situation by Type of Disability _________ Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live alone… N (Disability Type) = 393

29. Congregate Housing as Preferred Living Situation by Type of Disability _________ Regardless of your current living situation, what would your ideal living situation be? Ideally, I would like to live in a group or congregate home… N (Disability Type) = 194

30. Next Steps _________ • Additional analysis: question 6 (current and desired levels of assistance with activities of daily living) and statistical significance on key demographic variables • Full report • Executive Policy Summary • ?

31. For More Information Dr. Anthony Cahill Director, Division of Disability and Health Policy Center for Development and Disability 2300 Menaul Boulevard NE Albuquerque, NM 87107 (505) 272-2990 acahill@salud.unm.edu _________ To review or download a copy of this report, or to see other reports as they become available, please visit http://cdd.unm.edu/dhpd/index.asp Click on “Programs and Projects” and then on “Survey of Independent Living”