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2010-2011 Ryan White Services Report Data

2010-2011 Ryan White Services Report Data . CAPT Tracy Matthews Acting Director, Division of Policy and Data E. Amaka Nwankwo-Igomu Chief, Data Management Branch U.S. Department of Health and Human Services Health Resources and Services Administration HIV/AIDS Bureau

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2010-2011 Ryan White Services Report Data

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  1. 2010-2011 Ryan White Services Report Data CAPT Tracy Matthews Acting Director, Division of Policy and Data E. Amaka Nwankwo-Igomu Chief, Data Management Branch U.S. Department of Health and Human Services Health Resources and Services Administration HIV/AIDS Bureau February 5, 2014

  2. Objectives • At the end of this presentation, participants will be able to: • Describe the Ryan White HIV/AIDS Program (RWHAP) and the HIV epidemic in the United States • Discuss Ryan White Services Report (RSR) data results • Identify the impact RWHAP has had on the HIV epidemic • Identify planned future analyses using RSR data

  3. Presentation Overview • HIV Epidemiology • RWHAP Background • RSR Background • Program Reach • RSR Demographics • RWHAP Funded Services • Summary and Future Data

  4. HIV Epidemiology in the United States

  5. Overview • CDC estimates that 1,148,200 persons ages 13 years and older are living with HIV infection; 207,600 (18.1%) are unaware of their infection (Source: CDC Fact Sheet HIV in the United States: At A Glance, February 2013) • At the end of 2010, an estimated 888,921 adults and adolescents were living with diagnosed HIV infection in the United States and six dependent areas (Source: CDC slide set, Epidemiology of HIV Infection through 2011)

  6. Ryan White HIV/AIDS Program Background

  7. About the Ryan White HIV/AIDS Program • The Ryan White HIV/AIDS Program (RWHAP) provides HIV-related services to more than half a million people each year • First enacted in 1990 as the Ryan White CARE (Comprehensive AIDS Resources Emergency) Act • Amended and reauthorized four times: in 1996, 2000, 2006, and 2009

  8. About the Ryan White HIV/AIDS Program • Largest Federal program focused exclusively on HIV/AIDS care • Through a number of programs, called Parts, RWHAP works with cities, states, hospitals, community health centers and other organizations • For individuals living with HIV/AIDS who have: • No health insurance (public or private) • Have insufficient health care coverage • Lack financial resources to get the care they need for their HIV disease

  9. RSR Data Management Background

  10. RSR Data Background • In 2009, outpatient ambulatory medical care (OAMC), medical case management (MCM) and case management (CM) providers were required to report client-level data for the first time • In 2010, all providers were required to report client-level data • Ryan White Services Report (RSR) • The Ryan White Data Report (RDR) was retired in 2010 • RSR refers to all RWHAP “client-level data”

  11. RSR Background • Data are reported annually during submission period • Calendar year data reported • The HIV/AIDS Bureau needed to develop a data management process for client-level data • Six stage process

  12. RSR Data Management Process 12-18 months

  13. De-duplication Probabilistic record linking approach Unique eUCIs are considered unique Uses several demographic data elements Felligi-Sunter model used to assign each record pair a score based on the demographic data elements Threshold for accepting or rejecting match is established RSR Data Management Process

  14. RSR Data - The Details Important things to keep in mind: • This is a new dataset and as such is not considered to be mature • 2011 data are preliminary • Data quality issues such as high missing/unknown values • Reflects data reported but may not fully reflect services provided

  15. Ryan White HIV/AIDS Program Response to the Epidemic

  16. Overview • During calendar year 2011, an estimated 553,999 individuals received at least one RWHAP-funded service in calendar year (Source: preliminary Ryan White Services Report data, CY 2011) • Based on CDC estimates, in the United States, RWHAP is serving 48% of estimated persons living with HIV infection (n= 1,148,200) and 62% of estimated persons living with diagnosed HIV infection (n=888,921)

  17. Gender of Adults and Adolescents Living with Diagnosed HIV Infection as of the End of 2010 and RWHAP Clients, Calendar Year 2011 HIV Epidemiology source: CDC Slide set, Epidemiology of HIV Infection through 2011. Gender represents adult and adolescent cases living as of 12/31/2010. Ryan White HIV/AIDS Program source: RSR preliminary 2011 data. Gender represents clients who received at least one RWHAP-funded service in calendar year 2011.

  18. Race/Ethnicity of Adults and Adolescents Living with Diagnosed HIV Infection as of the End of 2010 and RWHAP Clients, Calendar Year 2011 HIV Epidemiology source: CDC Slide set, Epidemiology of HIV Infection by Race/Ethnicity through 2011. Race/ethnicity represents adult and adolescent cases living as of 12/31/2010. RWHAP source: RSR preliminary 2011 data. Race/ethnicity represents clients who received at least one RWHAP-funded service in calendar year 2011.

  19. Demographics

  20. Ryan White Services Report, 2010 & 2011Gender of Clients Served N = 553,766 N = 555,762 *Less than 1% of clients served were transgender. Gender was unknown or missing for 413 clients in 2010 and 233 clients in 2011.

  21. Ryan White Services Report, 2010 & 2011Race/Ethnicity of Clients Served Race/ethnicity is unknown or missing for 13,100 clients in 2010 and 13,807 clients in 2011. Race and ethnicity required for all clients regardless of services received.

  22. Ryan White Services Report, 2010 & 2011Age of Clients Served* Birth year is missing for 220 clients in 2010 and 13 clients in 2011. Birth year required for all clients regardless of services received.

  23. Ryan White Services Report, 2010 & 2011Client Payer Source N = 466,819 N =429,256 Payer source is unknown or missing for 78,463 clients in 2010 and 45,918 clients in 2011. Payer source is required for clients who received any core medical service or non-medical case management services.

  24. Ryan White Services Report, 2010 & 2011Housing Status For Clients Served Housing status is unknown or missing for 60,346 clients in 2010 and 43,441 clients in 2011. Housing status is required for clients who received outpatient ambulatory medical care, medical case management, non-medical case management, or housing services.

  25. Ryan White Services Report, 2010 & 2011HIV Status of Clients Served HIV status is unknown or missing for 4,150 clients in 2010 and 4,919 clients in 2011. HIV status is required for clients who received outpatient ambulatory medical care, medical case management, or non-medical case management services.

  26. Ryan White Services Report, 2010 & 2011Annual Household Income for Clients Served N = 376,816 N =416,653 Annual household income is unknown or missing for 76,134 clients in 2010 and 49,743 clients in 2011.

  27. Ryan White Funded Services

  28. Top 10 Services Used, By Year *Core Medical Services

  29. 2010 Ryan White Services Report (RSR)Number of Clients Served and Visits for Core Medical Services

  30. 2011 Ryan White Services Report (RSR)Number of Clients Served and Visits for Core Medical Services

  31. Ryan White Services Report, 2010 & 2011Percentage of Clients Served By Core Medical Service Fewer than 1% of clients received the following services: home health care, home and community-based case, and hospice.

  32. Ryan White Services Report, 2010 & 2011 Percentage of Clients Receiving Support Services* *Fewer than 1% of clients received the following services: childcare, developmental assessment, linguistics, permanency planning, rehabilitation, respite care, and substance abuse treatment, residential.

  33. Summary of the Ryan White HIV/AIDS Program in Context

  34. Summary of the Ryan White HIV/AIDS Program • Compared to national surveillance data, the RWHAP serves a higher proportion of: • Women • Racial/Ethnic Minorities • RWHAP serves almost half (48%) of estimated persons living with HIV infection (n= 1,148,200) • Approximately 62% of estimated persons living with diagnosed HIV infection (n=888,921) are RWHAP clients

  35. A Look at 2011 State Profiles

  36. State Profiles Overview State-level information related to the Ryan White HIV/AIDS Program Data sources: Health Resources and Services Administration Census Bureau (Poverty and Health Insurance data) Centers for Disease Control and Prevention (CDC) (HIV/AIDS Surveillance data)

  37. State Profiles Content • Section A — State Overview • Section B — HIV/AIDS Epidemic  • Section C — Program Grantees and Funding  • Section D — Provider Characteristics • Section E — Client Characteristics   • Section F — Services   • Section G — Clinical Data NEW! • Section H — AIDS Drug Assistance Program   • Section I — Oral Health NEW! • Section J — HHS Indicators NEW! • Section K — National HIV/AIDS Strategy NEW!

  38. Future/Next Steps

  39. Future/Next Steps • 2014 Upcoming Data Releases • RSR 2012 Preliminary Data • Continuum of HIV care among Ryan White HIV/AIDS Program clients—United States, 2010 and 2011 (Doshi, R. et al. In Progress) • National HIV/AIDS Strategy and Health and Human Services Indicators

  40. HRSA/HAB HIV Care Continuum: Initial Concepts Cheever L. Clinical Infectious Diseases 2007;44:1500-2.

  41. CDC Stages of Care – 2009 National HIV Surveillance System & Medical Monitoring Project CDC. HIV in the United States: Stages of Care. July 2012. Hall HI, Frazier EL, Rhodes P, et al. JAMA Internal Medicine. Jun 17 2013:1-7.

  42. Persons in Care: Ryan White Services Report, 2010 and 2011

  43. Retention in HIV Care and Viral SuppressionRyan White Services Report, 2010 and 2011 Retention in HIV care Numerator: At least 2 HIV care visits at least 90 days apart during the calendar year Denominator: HIV+, RWHAP-funded HIV care, visit dates available Viral suppression Numerator: HIV-1 RNA <200 copies/ml at the most recent check during the calendar year Denominator: HIV+, RWHAP-funded HIV care, visit dates & viral load available

  44. HHS Indicators

  45. Questions?

  46. Amaka Nwankwo-Igomu 301-443-6561 enwankwo-igomu@hrsa.gov Contact Information

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