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CPCRN: Overview and Cancer Registry Research

CPCRN: Overview and Cancer Registry Research. Kurt M. Ribisl, PhD University of North Carolina at Chapel Hill CPCRN Coordinating Center CDC, Atlanta, GA May 24, 2010. CPCRN Mission. To accelerate the adoption of evidence-based cancer prevention and control in communities. Organization.

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CPCRN: Overview and Cancer Registry Research

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  1. CPCRN: Overview and Cancer Registry Research Kurt M. Ribisl, PhD University of North Carolina at Chapel Hill CPCRN Coordinating Center CDC, Atlanta, GA May 24, 2010

  2. CPCRN Mission To accelerate the adoption of evidence-based cancer prevention and control in communities.

  3. Organization • One of five Thematic Research Networks in the Prevention Research Centers (PRCs) • Only Thematic Network focused on dissemination and translation • Collaboration with two Federal Agencies • CDC – Division of Cancer Prevention and Control • NCI – Division of Cancer Control and Population Sciences • Ten Network Centers at major research institutions

  4. PI’s Michelle Kegler, DrPH Jennifer Allen, ScD, MPH, RN Marcia Ory, PhD, MPH Betsy Risendahl, PhD Roshan Bastani, PhD James Hebert, ScD, MSPH Cathy Melvin, PhD Kurt Ribisl, PhD (Coord Ctr) Maria Fernandez, PhD Vicky Taylor, MD, MPH Matthew Kreuter, PhD, MPH

  5. Network Center Map

  6. Novel use of Registry Data in SC Hebert JR, Daguise VG, Hurley DM, Wilkerson RC, Mosley C, Adams SA, Puett R, Burch JB, Steck SE, Bolick-Aldrich Sl. Mapping cancer mortality-to-incidence ratios to illustrate racial and gender disparities in a high-risk population. Cancer 2009;115:2539-52.

  7. PrCA Incidence in Relation to Soil Metal Concentration: Unique Use of Combining SCCCR & Environmental Data Selenium Zinc Wagner SE, Burch JB, Hussey J, Temples T, Bolick-Aldrich S, Mosley C, Liu Y, Hebert JR. Soil zinc content, groundwater usage, and prostate cancer incidence in South Carolina. Cancer Causes Control 2009;20:345-53.

  8. Texas Cancer Information • Texas Cancer Information can connect patients, caregivers, the general public, health care policy planners, physicians and other health professionals with reliable online cancer information. • Dr. Fernandez is on the advisory committee. • Dr. Fernandez is working with Lewis Foxhall on developing a logic model for the TCI.

  9. UCLA & California Cancer Registry • Most prior studies with cancer registries: observational research re: incidence and mortality • Cancer registry represents method to recruit survivors and first-degree relatives (FDRs) into innovative effectiveness and dissemination studies • UCLA conducted series of studies with breast, colorectal, prostate, and melanoma FDRs • •Used CCR to contact cancer cases and invited them to refer FDRs to study Ethnically-tailored Recruitment Brochures Recruitment Through CCR Enhances Ability to Conduct Research with Multi-Ethnic Samples Results of Randomized Trial to Increase CRC Screening in Ethnically-Diverse FDRs in CA

  10. Source: Optimizing NC Cancer Outcome Initiative (Nov 3, 2009)

  11. 2002-2006 Top 10 ALL Cancer Mortality Rates in NC Camden Northampton Gates Currituck Alleghany Rockingham Warren Ashe Surry Caswell Stokes Pasquotank Hertford Vance Person Halifax Perquimans Wilkes Granville Watauga Yadkin Guilford Orange Chowan Bertie Forsyth Franklin Mitchell Avery Nash Yancey Caldwell Alamance Durham Alexander Davie Washington Edgecombe Madison Dare Martin Iredell Tyrrell Burke Wake Davidson Wilson Buncombe Catawba Chatham McDowell Randolph Haywood Pitt Rowan Beaufort Swain Hyde Johnston Lee Lincoln Greene Graham Rutherford Henderson Cabarrus Jackson Harnett Gaston Moore Stanly Lenoir Wayne Polk Cherokee Cleveland Craven Transylvania Macon Montgomery Pamlico Mecklenburg Clay Cumberland Jones Sampson Richmond Anson Hoke Union Duplin Carteret Scotland Top 10 ALL Cancer Mortality Rates in NC Tyrrell (245.3) Camden (243.6) Granville (241.0) Edgecombe (238.0) Bertie (237.6) Hertford (235.5) Vance (226.9) Scotland (225.5) Hyde (222.5) Franklin (219.5) Onslow Robeson Bladen Pender New Hanover Columbus Brunswick NC Central Cancer Registry (2010). 2002-2006 Mortality Rates

  12. Overview H-e-NC is a platform for delivering and testing interventions to reduce cancer related morbidity and mortality Priority cancers are breast, colon, and lung Priority behaviors linked to tobacco use; obesity; lack of regular cancer screening, referral, and follow-up.

  13. Interventions • Interactive telephone, web-based, and mobile interventions • Decision support interventions • Health care provider and system interventions • Social network, organization, and community participatory approaches to reaching minority and underserved populations • Investigation of and interventions to address racial inequities in cancer health care Source: Optimizing NC Cancer Outcome Initiative (Nov 3, 2009)

  14. Maximizing the social impactof cancer registry data Washington University

  15. How can we do better? • Broader goals • New audiences • Information design • Technology and tools • Strategic, proactive approach

  16. This project • Design & test new displays of cancer data • Propose best practices • Share with cancer registry community

  17. Alternative Formats

  18. Promoting Screening Hi-Risk Areas • Promotion of screening through kiosks • Washington University (Matt Kreuter et al.)

  19. Reach and specificityCriteria for prioritizing among settings Highest reach Laundromats • Health centers • Lowest specificity Highest specificity Public libraries • Social services • • Churches • Beauty salons Lowest reach Source: Kreuter et al.

  20. Using technology to connect rarely and never screened women to mammography • kiosks equipped with telephones and wireless technology • placed in Laundromats and public libraries to reach high volumes of rarely or never screened women • kiosk-administered survey identifies women needing mammograms • instant connection to nearby, free mammography programs directly from the kiosk

  21. CPCRN Strengths • Advancing science for implementation and translation research • Strong community partnerships • Focus on underserved populations • Broad geographic outreach • Research focus that complements CDC priorities • Infrastructure funding provides impetus to focus beyond discovery and be opportunistic

  22. Contact Us • CDC Contacts • Kathi Wilson • Vicki Benard • UNC Coordinating Center • Kurt M. Ribisl • (919) 843-8042; kurt_ribisl@unc.udu • Contact Centers Directly on Specific Projects – please cc: Kurt/Kathi/Vicki

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