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FIRST ANNOUNCEMENT Educational Program Friday 29 September 2006 -thalassaemia from prevention to treatment Salle OD – C

Association Belgo Méditerranéenne de Lutte contre la Thalassémie A.S.B.L. Rue Louis Biernaux, 4 – 6040 Jumet Belgium Tel/Fax 071/37.01.71. Meeting Commitee AM Sechi-Soggia, C. Vermylen, B. Gulbis Meeting Secretariat Mme Soggia Graziella Phone/Fax : 00-32-71-37-01-71

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FIRST ANNOUNCEMENT Educational Program Friday 29 September 2006 -thalassaemia from prevention to treatment Salle OD – C

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  1. Association Belgo Méditerranéenne de Lutte contre la Thalassémie A.S.B.L. Rue Louis Biernaux, 4 – 6040 Jumet Belgium Tel/Fax 071/37.01.71 Meeting Commitee AM Sechi-Soggia,C. Vermylen, B. Gulbis Meeting Secretariat Mme Soggia Graziella Phone/Fax: 00-32-71-37-01-71 E-mail:abmlthalassemie@hotmail.com Language The official language of the meeting ins English and will be translated in French and Dutch Registration Fees Friday 29 September Meeting/lunch Dinner Medical doctor € 50 € 50 Other € 25 € 50 The registration fee includes access to the scientific session, the congress bag and badge, coffee breaks and lunch. If a participation at the reception on Friday evening is desired, a separate fee must be paid. Saturday 30 September No fee – Accreditation A request for accreditation has been submitted FIRST ANNOUNCEMENT Educational Program Friday 29 September 2006 -thalassaemia from prevention to treatment Salle OD – Centre Borschette Rue Froissart, 36 1040Brussels Belgium Saturday 30 September 2006 Patients session Crowne Plaza Europa Hotel Brussels Rue de la Loi, 107 1040 Brussels Belgium

  2. Friday 29 September : Scientific Program 14.15 : Transfusion and iron overload A. Kattamis (Athens, Greece) 14.45 : Management issues of patients with -thalassemia MJ Cunningham (Boston, USA) Coffee Break 15.45 : Measurement of iron overload J. Wood (Los Angeles, USA) 16.15 : Iron chelation, the chaging paradigm J. Porter (London, UK) 16.45 :Haematopoietic stem cell transplantation I. Roberts (London, UK) 17.15: Gene therapy Y. Beuzard (Paris, France) 20.00 Dinner 08.30 : Welcome Coffe and Registration 09.00 : -thalassemia from Belgium to Europe: ENERCA project B. Gulbis (Brussels, Belgium) 09.30 : Epidemiology : where to implement comprehensive national services ? Angastiniotis Michael (Nicosia, Cyprus) 10.30 : Screening and diagnosis: when and how? R. Galanello (Cagliari, Italy) Coffee Break 11.30 : Genetic counselling A. Iolascon (Napoli, Italy) 12.00 : Fetal sampling E. Jauniaux (London, UK) 12.30 : Preimplantation genetic diagnosis I. Liebaers (Brussels, Belgium) Lunch 13.30 : Clinical spectrum of -thalassemia MD Capellini (Milan, Italy) Saturday 30 September : Patients session 08.30 : Bienvenue 09.00 : Résumé du programme scientifique (29 sept.) 09.30 : Table ronde: échange médecins/ patients/ familles 12.30 : Apéritif

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