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how. Kimberly McCartha August 2, 2013. Being how do you feel. Table of Contents. Hold onto hope – each journey is individual. People How you should be. Your Feelings Right Legitimate. Hold onto hope – each journey is individual. Dementia Experience No one signs up

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  1. how Kimberly McCartha August 2, 2013

  2. Being how do youfeel

  3. Table of Contents

  4. Hold onto hope – each journey is individual • People • How you should be • Your Feelings • Right • Legitimate

  5. Hold onto hope – each journey is individual • Dementia Experience • No one signs up • Care Partner • PWD

  6. Hold onto hope – each journey is individual Choices • Choices • GO on Journey or NOT • No set time • Unknown things to come • Alongside PWD • Huge personal cost • Respected & Supported • Not for everyone

  7. Hold onto hope – each journey is individual • Choices • Overwhelming • Despair • Anxiety • Fear

  8. Hold onto hope – each journey is individual • Choices • HOPE • Good times together • Inner peace • For support • Exceptional care • QOL

  9. Hold onto hope – each journey is individual

  10. Become care partners to weather the storm ‘I do not want to be mothered’

  11. Become care partners to weather the storm • Instinct • Look after • Show care • Risk of removing rights • Independency • Control

  12. Become care partners to weather the storm • Care Partners • Negotiate together • Harder than carer • Looking after someone • Not for everyone

  13. Being supportive involves deciding on your purpose together • Supporting PWD • Starts with PWD • Journey • We join them • Their shoes • Empathy • Choices • Enabling to live

  14. Being supportive involves deciding on your purpose together • Common purpose • Express needs • PWD • Partner • Third Person • Dementia • Include • Postive

  15. Being supportive involves deciding on your purpose together • Common purpose • Express needs • PWD • Partner • Third Person • Dementia • Include • Postive

  16. Closeness is what counts • Sensitive to losses • Value self esteem • Need reassurance of love/care • Closeness needed • Heightened • Trust feeling rather • than facts • Communicate now

  17. Learn about dementia –collect strategies • EDUCATE • Ready for feeling • You expert of your experience • Publications a plus • Person Centerd • Represents rights • Needs of care partner

  18. Learn about dementia –collect strategies • Focus on Person not disease • Everything has meaning • Connected to feelings

  19. Accept someone as they are-embrace their reality • Accept • PWD reality • Difficult • Learn their language • Language is feelings not facts • Can’t fix them • Reality is real

  20. Using logic and reason generally won’t work • “Thanks very much, that’s a great help. That will keep the bedding nice and clean”

  21. Using logic and reason generally won’t work • Our Brains = Feelings = Thinking = Action

  22. Using logic and reason generally won’t work • PWD Brains = Feelings = Action

  23. Using logic and reason generally won’t work • PWD Brains I feel and then I act

  24. Using logic and reason generally won’t work • PWD Brains Correcting • Highten mistake • Humiliate • Damage self esteem Live in their world

  25. Being person centered withoneself is important • People who are good at being a partner, being caring, being loving, are often not very good • at being careful to take care of themselves.

  26. Being person centered withoneself is important • Need time & space • Watch for stress • Receive support • Believe your well being matters too!

  27. Start with being heartfelt as a person centered worker Being person centered is about how you are with people. It is not just what you do

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