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Immunoglobulin Database Update

Stay up-to-date with the latest developments in the Immunoglobulin Database. Manage product shortages, support procurement and monitoring, recall management, prescribing audits, commissioning support, guidelines, and efficacy reviews. Access data requests from regional commissioning hubs and national services. Over 82,000 patients registered with 96,000 treatment episodes recorded. Join the 1,100 active database users and benefit from improved features such as patient home therapy recording, enhanced security, automated dashboards, improved search system, and more.

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Immunoglobulin Database Update

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  1. Immunoglobulin Database Update Dr Rob Hollingsworth Head of MDSAS

  2. Thank you for your support of the database!

  3. Database Services Recap Management of product shortages Support for Ig procurement and monitoring Safety and recall management Prescribing audit CQUINs and Dashboards Commissioning support Guidelines and efficacy/clinical review

  4. Data Requests Regional commissioning hubs NHS England National Services NHS Scotland Commercial Medicines Unit (CMU) Methods Pharma UKPIN etc.

  5. Database Status Update Almost 82,000 patients registered with 96,000 treatment episodes Multiple specialities and 140+ conditions 1,100,000 separate infusion entries 160 Trust’s submitting data (England, Scotland and Northern Ireland) Over 41 million grams of immunoglobulin recorded 1,100 Active database users

  6. Increasing Annual Usage of Ig

  7. Top 20 Trusts (Patients Treated)

  8. Top 20 Trusts (Usage)

  9. Annual Report 2018 www.igd.nhs.uk

  10. Immunoglobulin Database Updates Recent Releases Version 5.5 – 5.8 • Pilot of Patient Home Therapy Recording System - Haemtrack • Improved security allow user to unlock account • Closed down inactive treatment episodes • Infusion upload system improved – now allows 1200 records • Auto submission of dashboards added • Improved search system including search by batch number • Improved reporting and migration to SSRS2017

  11. Update Roadmap • Update database to reflect new commissioning policies • Rollout of patient home therapy monitoring – Haemtrack • Dynamic upload forms – automatic product updates • Upload from EPIC EPR • Dashboard information automatic submission to NHS England • Merge Panel Episode pilot process • Reports updated to latest technology SSRS2017 • Prior approval?

  12. Database Support Calls Trusts can create their own user accounts

  13. Account Management Functionality

  14. Automated Uploads In the last year: 40 Hospitals using the spreadsheet infusion upload 6 Hospitals currently using the follow-up upload 18 Hospitals currently using the Ig request upload

  15. Future Possible Database Developments Electronic Referral Management and Image Capture • ERIC - Electronic referral, triage and advice & guidance • SiD App - Secure Image Data, captures and transfers images to NHS systems • Information governance approved • Use own device to capture images (images never stored on device) Successfully used in : Dermatology, Wound care, Burns, Plastics, Orthoplastics, Spinal Cord Injury, Vascular, etc.

  16. Demo Spinal Demo 2 3 1 Upload Scan QR code Take picture

  17. Future Database Developments Haemtrack Home Diary System 1.5 Million Entries by Patients Smartphone compatible Multiple language support Image capture support

  18. Conclusion The database and the work of Trusts to provide information to it, continues to be crucial to successfully manage the many challenges of Immunoglobulin therapy

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