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1. Diabetes: A Family Matter A Toolkit for Appalachia Sharon A. Denham, DSN, RN
Professor, Ohio University School of Nursing
Director, Appalachian Rural Health Institute
2. Support & Funding
Centers for Disease Control and Prevention National Diabetes Education Program
Ohio Department of Health Diabetes Prevention and Control Program
Ohio University’s Appalachian Rural Health Institute (ARHI)
Ohio University, Diabetes Research Initiative (DRI).
Ohio University’s Office of Research and Sponsored Projects Challenge Grants
3. Dedication: Kimberly Malone
4. Appalachia
5. Formative Research Findings Environmental Scan (Winter, 2006)
Health Professionals and Diabetes Indicators
Diabetes Education
Low Health Literacy
Qualitative Studies (2007)
Family Routines in Diabetes Self-Management
Living with Diabetes in the Appalachian Region
Family Health Model (Denham, 2003)
6. Assumptions for Toolkit Development Type 2 diabetes
Rural rather than urban
Family-focused
Cultural sensitivity
Literacy & low health literacy
Community/family involvement
7. Focus of the Toolkit Healthy lifestyles, diabetes prevention, and diabetes self-management
Cultural identification (avoid stereotypes)
Empowerment
Living with diabetes
Diabetes educators/others as leaders
Volunteers
8. SUGAR Helpers Support to
Unify
Generations in the
Appalachian
Region
9. Toolkit Development Novel approaches/innovative ideas
Edutainment
Interdisciplinary input
Web 2.0 availability
Multiple audience types
10. Storied Lives of Diabetes Lived experience vs. biomedical experience
Narrative competence about clinical care????
Diabetes as a “Family Disease”
Diabetes more than individual problem (extended kin networks, place, faith, etc.)
Health legacies
Reconstruct new stories (e.g., not being “beholden to others”)
11. STUCK in the STORY
12. Citizen Action Give local people a voice.
Take personal actions to improve the quality of life of those that live in your community.
Work with others to positively mobilize the resources available in your community to address the health of local residents.
Empowerment and active involvement of all local residents.
13. Citizen Action Train the trainer model
Develop and activate community coalitions
Utilize SUGAR Helpers (Support to Unite Generations in the Appalachian Region)
14. Web-Based Delivery Broadband challenges
Health care professionals
Persons with diabetes and families
Health consumers
Others
15. Program Materials Diabetes Educator Manual
SUGAR Helper Manual
Series of brochures
Posters
Fotonovellas
Film
Plays
Toolkit Activities
Bookmarkers
16. Program Overview EDUCATOR MANUAL
Community collaboration
Volunteer recruitment materials
Media campaign materials
Education al program
Sustainability
VOLUNTEER MANUAL
Conversations about diabetes/not diabetes educators
Make diabetes visible in rural communities
Work with personal lifestyle first
Interact with own family, local groups, and community
17. Brochures (9) It’s a Family Matter
A Community Concern
It’s in the Genes
Healthy Living
Getting Diabetes Information
Family Health Routines
Depression
Talk to Your Kids
When it Gets Complicated
18. Fotonovellas Lack of Family Support
Positive Family Support
19. Other Materials 3 twenty minute plays
Film: “Living with Diabetes in Appalachia”
20. Contact Information Sharon A. Denham, RN, DSN
Professor, Ohio University School of Nursing
Director, Appalachian Rural Health Institute
E365 Grover Center
Athens, Ohio 45701
740-753-4499
denham@ohio.edu
www.diabetesfamily.net