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Caregiver Adaptations to Reduce Environmental Stress (CARES): The Role of Environmental Coping Strategies (ECS). Dory Sabata, OTD, OTR Co-Author Julie Overton, MHA, MSG AoA National Summit: Creating Healthy and Caring Communities September 23, 2003. Overview.
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Caregiver Adaptations to Reduce Environmental Stress (CARES):The Role of Environmental Coping Strategies (ECS) Dory Sabata, OTD, OTR Co-Author Julie Overton, MHA, MSG AoA National Summit: Creating Healthy and Caring Communities September 23, 2003
Overview • Importance of ECS for Caregivers • Project Overview & Findings • Problematic Activities in the Home & Low-Tech Solutions • NFCSP and Funding for ECS • Summary and Recommendations
Importance of ECS for Caregivers • Environmental coping strategies (ECS): • changes made to the home environment that enhance care and reduce physical stress of caregivers • Home Modifications (HM) • Assistive Devices (AD)
Goal of CARES To create and stimulate improved systems of support services that increase caregiver utilization of ECS to reduce physical burden
Objectives of CARES • Assess caregivers • Educate service providers on ECS • Stimulate aging network activities • Evaluate and disseminate strategies
Caregiver Focus Groups • Convenience sample • 4 groups, N=29 (6, 5, 9, 9) • Primarily live with the care recipient (CR) • CR: parent, spouse, other relative • Average 4-6 yrs. as caregiver
Lessons from Caregivers • Most physically demanding • Lifting, transferring, and bathing • Most frequent HM • Grab bars • Homemade strategies • Most problematic room • Bathroom
Lessons from Caregivers (cont.) • Concerns of community mobility • Getting out • Transportation • Limited use of ECS • Cost prohibitive • Benefits not understood
Lessons from Caregivers (cont.) • Perception of financial assistance • Funding only for institutional care • Deplete own finances at home • Where to go? • Hardware Stores • Retail stores
Problematic Activities & Low Tech Solutions • Toileting • Bathing
Problematic Activities & Low Tech Solutions (cont.) • Using steps
Problematic Activities & Low Tech Solutions (cont.) • Moving around in the home • Getting in and out • Of the home • Of a vehicle
NFCSP & Funding for ECS • AAA’s identify funding as #1 • Informational need for ECS • Challenge to caregiver services • Piece together funding • Orange County AAA and Rebuilding Together
NFCSP & Funding for ECS (cont.) • Sub-contract services • Reimburse families • Utilize community service groups • Train Care Managers
Recommendations • Utilize NFCSP Supplemental Services for HM and AD services • Provide Caregivers information on ECS • Outreach • Support groups • Raise awareness of ECS benefits • To Policymakers • To Caregivers • Through community partnerships
Summary We cannot ignore the physical stresses placed on CGs who provide daily assistance to their CRs. ECS can help care for the CG by making caregiving activities less stressful, more convenient, and easier.
Contact Information National Resource Center on Supportive Housing and Home Modification University of Southern California Andrus Gerontology CenterLos Angeles, California 90089-0191 www.homemods.org sabata@usc.edu (213) 740-1364