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SH Forum 26 th November 2010

Strengthening the public voice in shaping sexual and reproductive health services - Changing relationships. Prof Nicola Robinson and Dr Ava Lorenc, Thames Valley University . SH Forum 26 th November 2010. Background: PPE in the NHS. 2000 2001 2008 2009 2010.

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SH Forum 26 th November 2010

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  1. Strengthening the public voice in shaping sexual and reproductive health services - Changing relationships Prof Nicola Robinson and Dr Ava Lorenc, Thames Valley University SH Forum 26th November 2010

  2. Background: PPE in the NHS 2000 2001 2008 2009 2010 • NHS Plan: “empowered patients” • Strengthening accountability: “patients are the most important people in the health service” • High Quality Care for All: “patient experience as a key driver of quality” • PPE Support programme: “patients and the public to drive the design and delivery of high-quality services” • NHS Constitution: “the NHS belongs to us all” • Working together: “personalisation of public services. information revolution” • Understanding what matters: “patient and service user experience to transform the quality of services” • Big Society • Liberating the NHS “patient experience”

  3. Aims of project Project one (research project) : • Review current policy, guidelines and practice on patient and public engagement (PPE) in SRHH • Identify best practice examples • Identify gaps in existing guidance Project two (working group) • Produce recommendations on how to effectively engage patients and the public  influence planning, development, delivery, evaluation and improvement of London SRHH services • Disseminate recommendations

  4. Research study

  5. Methods: Data collection Databases Web searches Phase 1: Documentary analysis and literature review (policies, websites, journal articles, published reports) Emails to PCT PPE leads Phase 2: Survey of PCTs in England regarding their PPE policies Phase 3: Online survey of stakeholder views and experience of PPE - Emails to LSHP contacts - London SH Forum Phase 4: Qualitative in-depth interviews with key stakeholders - Snowballing

  6. Response • Phase 1: 59 articles/documents included • Phase 2: 49 PCTs gave details of PPE activity 15 PPE strategy but not SRHH-specific 4 Mentioned SRHH in PPE strategy 1 PPE SRHH strategy 66 No response • Phase 3: 72 completed survey • Phase 4: 25 interviews conducted (7 Non NHS; 4 clinicians; 3 public health; 3 patient reps; 2 service users; 1 commissioner; 1 health promotion; 1 researcher) • 28 Best practice examples (in Boxes)

  7. Methods of PPE • User designed methods • Radio advertising • Helping design materials • Mystery shopping/ peer evaluation • As part of self-management • Patient reps – peer support • Peer education • Helping with service design • Innovative methods including videos etc • Community/peer researchers • Involvement in management • Taking part in job interviews • Reps on groups/executive/committee • Volunteers at service • Involvement in policy/decision-making • Direct contact with decision makers • Developing strategy • Simulated funding distribution • Leadership programs/role models • One-off consultations • Radio advertising • Events • With community groups • Collecting views (routine) • Needs assessment • Audit • Feedback on website • Surveys • Comments boxes/electronic • Online survey • Collecting views (in-depth) • Online forum/network • Facebook • Qualitative Interviews • Social marketing • Focus groups/workshops/forums • Participatory Action research

  8. Key themes/issues/barriers (prioritised by participants) • Organisational commitment to PPE • Motivating patients/public • Using public awareness/education campaigns to engage patients • Changing NHS philosophy • Informing patients/public • Overcoming the barrier of stigma. • Working with voluntary sector organisations.

  9. Current gaps in: • Engaging certain population groups • Specifically targeting non service users • Sexual/reproductive health (not HIV) • Structured PPE/organisational committment • Training for patients/staff • Dedicated staff/time/money • Measuring impact • Knowledge amongst NHS staff • Universal standards for PPE

  10. Six overall recommendations General public and non service users Services and patients Trusts/health authorities Commissioners DH

  11. Report www.londonsexualhealth.org/patient-public-engagement

  12. Working group

  13. Remit • To take the findings/recommendations from the report and make them real • To advise the 2011-12 commissioning round, including GP consortia • To disseminate report findings and recommendations • To advise on training for NHS staff on PPE

  14. Plan • To create a PPE resource for SRHH services : • Advice, sources of information (including how to write a strategy and how to design audit tools) and best practice examples on PPE • Website format? • Large stakeholder event • Marketplace format, CPD, Feb/March 2011? • Who? • Where? • Sponsorship? • Network – suggestions? • Follow up training/events – suggestions?

  15. Thank you! Prof Nicola RobinsonDr Ava Lorence-mail: ava.lorenc@tvu.ac.ukphone: 0208 209 4414 Many thanks to LSHP for funding the project and to all the participants in the study

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