Breaking Down Silos: Resolving Academic, Medical, and Research Interests Once and for All

1. Session #30 Breaking Down Silos: Resolving Academic, Medical, and Research Interests Once and for All • Pre-Session Poll Question • Presenter • What describes my organization? • Integrated delivery system • Community hospital • Children’s hospital • Academic medical center • Accountable care organization • Physician group • Industry/Pharma • Other • Not applicable • Samuel Volchenboum, MD, PhD • Assistant Professor of Pediatrics • Director, Center for Research Informatics • Associate Chief Research Information Officer • University of Chicago Medical Center

2. The Problem It is difficult for an academic medical center to support clinical, educational, and research missions simultaneously. • Most academic programs rely on investigators or core services to provide support. • This often leads to siloing and an unfair appropriation of resources.

3. In this session, you will learn…. How an academic medical center can serve the three missions of clinical care, research, and education The pain points in developing enterprise-wide research services The importance of top-down leadership for supporting research informatics

4. The Setting • Adjacent to University of Chicago and Pritzker Medical School • 570 beds, 25,000 admissions, 492,000 outpatient visits, 78,000 ED visits • Physicians are employed by the University • One dean for the hospital, medical school, and biological sciences

5. UChicago’sSituation in 2011 Few centralized biomedical informatics resources existed within University of Chicago Medicine There was a growing need for: • Clinical data for research • Bioinformatics resources • Storage/Backup • High-performance computing • Clinical application development • Informatics educational opportunities

6. Establishing the Center for Research Informatics Established office of the CRIO in 2011 - Six staff, $10M, three-year investment HIPAA-secure, on-premises storage High-performance cluster computing Bioinformatics services Research data warehouse Application development Governance for research data Informatics education

7. Center for Research Informatics 2015

8. Applications Development and Support • Clinical Research Data Warehouse • IT Infrastructure • Bioinformatics • Administration Center for Research Informatics - 2015 • CRDW Director • Data Specialists • Database Experts • ETL Developers • Deputy Director • Communications • Business Administrator • Project Managers • IT Director • Systems Administrators • Security • VM Specialists • HPC Specialist • Bioinformatics Director • PhD Bioinformaticians • Scientific Software Dev • Applications Director • Software Engineers

9. Storage and Backup

10. Bioinformatics Publication-ready Results

11. REDCap Usage continues to soar

12. Clinical Research Data Warehouse Data from 2006 onward Filled 350+ requests since 2012

13. Poll Question #2 • On a scale from 1-5, how supportive of researchis your institution? • Not at all supportive • Somewhat supportive • Moderately supportive • Supportive • Very supportive • Unsure or not applicable

14. Patient Experience • Clarity Team • Patient Care Services • Center for Research Informatics • Quality Analytics • Office of Managed Care • Epic program • Procedural Services • Ambulatory Services • Physicians Group • Office of Strategic Planning • Hospital Analytics Program • Budget Operations & Planning Data Shopping • Many, many groups providing data independently • Users would submit requests to multiple places

15. Data Shopping

16. Analytics Core 2014 - Created single portal for all data requests • Weekly meeting to review and triage requests

17. Major 2015 Initiatives • De-identified self-service data portal • Full text clinic note search with NLP • National sample enrollment and tracking for clinical trials • Deployment of business intelligence infrastructure

18. Our Metrics of Success Lowering barriers to research Faculty utilization Grants submitted/awarded Papers published Faculty recruitment Educational opportunities • http://cri.uchicago.edu

19. Enterprise-wide impact • 1003 unique users • Number of Users

20. Lessons Learned Develop your brand. Therecan be no data without data governance. Never underestimate researchers’ ability to hurt themselves with data. Hire leaders with business experience.Expect to pay for talent…. it’s worth it. Meet with your direct reports often—be present. Court the institutional leadership—it will pay off.

21. Analytic Insights • Questions & • Answers • A

22. Choose one thing… • Write down one thing will you do differently after hearing this presentation

23. Thank You

24. Session Feedback Survey • On a scale of 1-5, how satisfied were you overall with this session? • Not at all satisfied • Somewhat satisfied • Moderately satisfied • Very satisfied • Extremely satisfied What feedback or suggestions do you have?

25. Upcoming Sessions Breakout Sessions – Wave 5 (2:20 PM – 3:05 PM) • Panel – Data Governance in Healthcare • How One ACO Is Using Analytics to Position Itself for Population Health Management and Shared SavingsJames J. Dearing, DO, FACOFP, FAAFP, Vice President, Chief Medical Officer, Honor Health • Panel – Best Practices in Achieving Physician Engagement • Panel – Precision Medicine and Embracing Variability • Improving Analytics and Processes to Ease Hospital CrowdingWes Elfman, Visualization Developer, Clinical and Business Analytics, Stanford Health CareTerrill Wolf, Manager, Data Architecture, Clinical and Business Analytics, Stanford Health Care Location Grand Salon Imperial Ballroom A Imperial Ballroom B Murano Venezia