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Energizing and Engaging a Work Force for Family-Centered Care Through Annual “Families As Partners” Conferences

Energizing and Engaging a Work Force for Family-Centered Care Through Annual “Families As Partners” Conferences. Presented by Karen M. Crow, MSEd. Coordinator of Family-Centered Care St. Louis Children’s Hospital At the 3 rd International Institute for Family-Centered Care Conference

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Energizing and Engaging a Work Force for Family-Centered Care Through Annual “Families As Partners” Conferences

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  1. Energizing and Engaging a Work Force for Family-Centered Care Through Annual “Families As Partners” Conferences Presented by Karen M. Crow, MSEd. Coordinator of Family-Centered Care St. Louis Children’s Hospital At the 3rd International Institute for Family-Centered Care Conference Seattle, Washington August 1, 2007

  2. History of the FAP Conferences • April, 2002--5 SLCH NICU reps. attended national IFCC conference and wanted to replicate sharing FCC to our hospital • Families wanted FCC expanded from the NICU to all units/services hospital-wide • November, 2002—1st Annual “Families As Partners” Conference put on by NICU staff and families

  3. 2002--1st Annual FAP ConferenceFamily-Centered Care 101 • National speaker shared national perspective on FCC and her hospital’s journey of implementing FCC • NICU Division Chief shared his perspectives • Family panel shared their stories and what FCC meant to their experiences

  4. Results of 1st Conference • Hospital president impressed by family panel and “grassroots” nature of movement • Assembled a group to determine how to move FCC to all units • Recommendation: Hire a coordinator • May 2003—Coordinator of Family-Centered Care hired

  5. 2003--2nd Annual FAP ConferenceInvolving Families: Families As Educators • National speaker shared national FCC perspective and importance of family involvement in medical education at many levels • NICU APN shared personal FCC story and her “conversion” to FCC practice • FCC champion physician panel shared benefits of family as educators in medical education • Family panel shared their experiences and “messages” about FCC to staff and physicians

  6. Results of 2nd Conference • Family-Centered Care Initiatives committee was formed to support staff in furthering their FCC efforts • Sibling Help Force formed to address how to better support patients’ siblings • Added members to FAC • More departments seeking FCC help

  7. 2004--3rd Annual FAP ConferenceHaving Those “Difficult Conversations” • National speaker shared national perspective and her work with FCC and multicultural issues related to such conversations • Involving families in discussions • Families with language issues and cultural differences • Talking to families about bad outcomes/death • Family panel included families with language barriers and families that had “difficult” outcomes

  8. Results of 3rd Conference • Inspired departments to ask for help with FCC initiatives • Added FAC members • Greater variety of departments attended • Added members to FCCI

  9. 2005--4th Annual FAP Conference“Oh, The Places You’ll Go…” • National speakers shared national perspective and journey of integrating families throughout their hospital • Staff panel shared “how to do” FCC • 5 SLCH departments were invited to present (some w/parents) their FCC initiatives • 6 poster presentations from other departments’ FCC initiatives

  10. Results of 4th Conference • Presenters were models for other areas to inquire and learn “how to do” FCC • Greater sense of “we can do this” in individual areas and practices • Added members to FCCI • Keynote speakers took conference idea back to replicate at their hospital

  11. 2006--5th Annual FAP ConferenceThe Past, Present, and Future of FCC at SLCH • The 1st national speaker returned—spoke about progress of FCC nationally and locally at SLCH • SLCH staff video clips tell of “what it was like” and “what they wish for the future”—included hospital leadership • SLCH departments highlighted FCC initiatives in 5 break out sessions and 9 poster presentations/displays • Audience participation of FCC concepts and thoughts

  12. Results of 5th Conference • Presenters had many communication doors opened as a result—several shadowing opportunities afterwards • Heightened awareness of presented programs and inspiration for new initiatives in new areas

  13. 2007—6th Annual FAP ConferenceNothing About ME, Without ME… • New CMO to give keynote • First Family Choice Award to be given • Patient panel to discuss what it was like to be included or not included in their care process and decisions • Staff panel who have been involved with a medical event that has since changed the way they practice • 9 departments break out session presentations • 7 additional department poster presentations—including posters from 2 branch hospitals

  14. Attributed Outcomes(As perceived by staff) • Conversations with and shadowing in departments of presentations for further learning • “Public permission” to practice FCC • Greater awareness of programs and initiatives • Impetus for new programs that involve family input much earlier in planning process • Greater use of Family Advisory Council for “family input” • FCC has become a part of hospital’s 5 year strategic plan and annual and individual department goals

  15. Attributed Outcomes(As perceived by leadership) • A place to showcase excellence across the organization • National speakers enabled us to hear “national news” and spark our interest to continue to raise the bar • Many different people exposed to FCC concepts • Demonstrated that SLCH had a high priority on FCC • Many departmental changes—EU, radiology, PICU, SDS, therapy services

  16. Added Programs • FAC’s Family Choice Award • Concierge Guest Service—Pathfinders, “Hospital and Neighborhood Services Guide”, Information Stations • “Family-Centered Care Today” newsletter • New NICU addition • Kid Guides

  17. Added Benefits • Increase in choices for family participation in care • Increase in family input being sought out for committees and focus groups through out hospital • More families are offering to “give back” through sharing stories/experiences to “make it better for the next family” **Expectation of family presence throughout hospital**

  18. Future Endeavors • Parent Advisor Orientation/Training program • Hiring of “Lead Parents” to help with major FCC program development and coordination • Families As Educators for residents • Family Mentoring Program • Unit-Based Joint Practice Teams

  19. Lessons Learned • Need to prepare family/staff panelists • Variety of staff needed for planning • “Competitiveness” can be beneficial • Great enthusiasm is generated!

  20. QUESTIONS? Please contact me for more information: Karen Crow Coordinator of Family-Centered Care St. Louis Children’s Hospital One Children’s Place, Suite PL-25 St. Louis, Missouri 63110 Phone: 314-454-2153 FAX: 314-454-4216 Email: kmc8279@bjc.org

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