Health care consumers in charge: A proposal for the Euro Diabetes Care Consumer Index

1. Health care consumers in charge:A proposal for the Euro Diabetes Care Consumer Index Brussels, Jan 10, 2006

2. Health Consumer Powerhouse – in an unique position • Empowering the consumer to take action by: • Analyzing and ranking of health care services • Consumer rating of hospitals, primary care • Knowledge of different treatment option offered • Consumer education/training. • Aim: set the standard for consumer-friendly healthcare and allow for patient choice.

3. Our way to address the transparency deficit(What does this mean? What is the deficit? Refer to patient safety – financial reasons) Health Consumer Indexes Systems level Production level Illness level Diagnosis Indexes Hospital Indexes Would be very inte- resting to strart! Rating Consumer interaction

4. Insert a page before this one with some disease data on inc some of the political pressure on the issue! Ie first paint the problem.Why a Euro Diabetes Care Consumer Index? • Diabetes is an area where numerous factors impact patients' quality of life. • It is one of the more common diseases and still transparency is very low. • Will find and show the good examples of diabetic care. • Good measure of the healthcare system as a whole. • Mention developement - new products etc

5. Deliverables • Provide patients with a real choice of therapy options, regardless of reimbursement system, information deficit or GP's preferences. Regardsless of location – when travelling one should have access to same kind of treatment as back home! • Increase access and outcome transparency as the Index is implemented as an informal diabetes care guideline. • Increase citizen awareness in targeted countries as well as among European opinion leaders about diabetes care failure via the Index launch, media impact and verbal presentations at various HC and policy events. • Reports produced by a well-respected analysis and consumer information provider, designed to be used in lobby work by citizens, NGOs, politicians and companies. • Potentially, annual/biannual Index updates exposing (the lack of) improvement. • The strong impact following on the presentation of the Swedish Diabetes Care Index in 2006 confirms the potential, with several county councils already implementing the Index findings. • Communicating the data to a broader public

6. The Euro Diabetes Care Consumer Index • Improving choice, services and quality by comparing the care of diabetes patients in a number of selected European countries. • Measuring outcomes and care adjustment to consumer expectations. • A platform for positioning and(ta bort market) communication towards key opinion leaders, politicians and citizens, undermining financial interest claiming to be scientific and patient friendly. • Use an economic argument – Coordinated program can lead to relife on HC BUDGET

7. Some potential index indicators Rights/Consumer knowledge/Access/Generosity/Outcomes Should work on listing the criteria due to severity • Is there a National Diabetes Care register? • Foot amputation incidence in people 65+ • Right to choose procuts etc/Knowledge of med devices that are available and are they reimbursed? • Retinopathy incidence (among diabetics) • Systematic eye exminations: target/actually attained • Podiatric care included in healthcare reimbursement? • Waiting times for specialist appointments (endocrinologist/nefrologist/ophtalmologist)   • HbA1c levels (systematically checked / % of patients above ~ 8) • Lifestyle improvement assistance (smoking cessation?, cooking lessons?, who is taking a lead on this International Food Association for example?,schooling programes like Jamie Oliver) • Does healthcare system provide specially adapted shoes/other ADL aids for diabetics? • Speed of reimbursement introduction of new pharmaceuticals/medical devices

8. Index work process, phase 1(3 months) Aim: Assess possibilities to build and successfully launch an Index. Create initial report including recommendations for work plan, choice of countries and criteria's to include in phase 2. • Part 1: Expert seminar (needs to be defined) to assess the present conditions, access to information sources and select relevant countries for the Index. • Part 2: Market research and interviews in concerned countries. Building networks.

9. Production flow, phase 1.

10. Work process, phase 2(5 months) • Fact finding, development and design. • Draft selection of indicators/criteria • Selection of countries • Time frame • Research • Index production • Country visits - interviews • Verification via MOH contacts, KOL, patient polls • Establishing indicators/criteria • Analysis and written report • Index report launch • A date that have a meaning for the disease area community. • Check when the diabetes day is • Follow up work included

11. GSK added value • Diabetes care in the spotlight. • The Index fills a gap – the need for a coordinated program and the needed data • A vehicle for alliances building during the production phase – will help key opinion leaders and authorities to think in new ways. • GSK will be able to set the agenda since you will have process insights. • Being part of the work process, GSK's added value re. diabetes care would be the focus of the discussion. • Patients will have more information, meaning a more rapid diagnose and thereby quicker access to needed therapy area.

12. Dr Arne Björnberg • CEO, University Hospital of Northern Sweden, Umeå. • Director of Health Management Systems and Network Solutions, IBM Healthcare Europe +MEA, Stockholm. • CEO, Apoteket AB (Nat. Swedish Pharmacy Corp.), Stockholm. • Director of Life Science Consulting Services, KPMG, Stockholm • Director Euro Health Consumer Index, Health Consumer Powerhouse During Dr. Björnbergs period as CEO of the University Hospital of Northern Sweden, the hospital (including the primary care organisation for the District) achieved a 30 % productivity increase leading to zero waiting lists for a 1000-bed hospital. Dr. Björnberg has been personally deeply involved in quantitative and qualitative measurement of healthcare, including the design of DRG-based pay-for-performance systems, for the past 15 years.

13. The health consumer will be the new driver The health consumer will be the new driver