1 / 22

Alzheimer Café or how to develop conviviality

Alzheimer Café or how to develop conviviality. Sabine HENRY President of the « Ligue Alzheimer asbl » (B) Vice-president of Alzheimer Europe. 15th Alzheimer Europe Conference Killarney (Ireland) – 11th June 2005. Alzheimer’s Disease :. but. ALZHEIMER’S DISEASE. LIGHT STAGE.

amato
Download Presentation

Alzheimer Café or how to develop conviviality

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Alzheimer Caféor how to develop conviviality Sabine HENRY President of the « Ligue Alzheimer asbl » (B) Vice-president of Alzheimer Europe 15th Alzheimer Europe Conference Killarney (Ireland) – 11th June 2005

  2. Alzheimer’s Disease : but... ALZHEIMER’S DISEASE LIGHT STAGE MODERATE STAGE SEVERE STAGE Ligue Alzheimer asbl

  3. Alzheimer Café :What is that in fact ? • DEFINITION: • A convivial place of meeting for patients, families, professionals, interested people,… A view of an Alzheimer Café in Charleroi (Belgium) Ligue Alzheimer asbl

  4. Alzheimer Café in Belgium :From where does that come ? • ORIGINS: • an initiative of Bere Miesen, Doctor in psychology (Mariëhaven, Holland). The general difficulty for all to talk about the disease (taboo). • the dance-cafés in Germany. An opportunity to maintain social, interhuman abilities Ligue Alzheimer asbl

  5. Alzheimer Café :Where is this in Belgium ? North Sea Netherlands B Liège Brussels Eupen Ottignies (in preparation) Germany Charleroi Namur France Neufchâteau 10.000.000 citizens 150.000 people with dementia Luxemburg Ligue Alzheimer asbl

  6. Alzheimer Café in Liège : in life, in the city A view of Liège (Belgium) Ligue Alzheimer asbl

  7. Alzheimer Café :Who takes part ? visitors = = actors experts Students Families Carers Patients Media Public authorities Ligue Alzheimer Dog Ligue Alzheimer asbl

  8. Alzheimer Café :A field for new experiences Maintaining abilities & learning by doing Alzheimer Café Ligue Alzheimer asbl

  9. Alzheimer Café :Why ? A lack of information • OBJECTIVE: • Spend a pleasant moment with each other • Be informed (informally) and exchange within a normal (not institutional) framework and so facilitate the acceptance of the disease for everyone A view of an Alz. Café in Charleroi (B) Ligue Alzheimer asbl

  10. Alzheimer Café :What’s necessary ? " Where is a will there is a way ! " • ORGANIZATION, CO-OPERATION: • with the local group of self-help (animation, group line, topics, material) • local and private support (room, sponsoring of drinks, transport) • Definition of a yearly program, once a month, at firm times and working days • Announcement for the concerned public via press, TV, Ligue Alzheimer,… Ligue Alzheimer asbl

  11. Alzheimer Café :How is this made ? Vade- mecum • METHOD: • Open group, indefinite number of participants. Informal framework with a season-adapted decoration. Orienting and normalizing behavior of the group line • TIMING: • in each case +/- 2 hours in the early afternoon • UNFOLDING: • individual greetings - Café/thé - topic of the daily before the group - free exchange - scatter into small groups - Café/thé - progressive locking Ligue Alzheimer asbl

  12. Alzheimer Café :What do we do ? Different activities and discussions according to the season, the mood, the desires,… ALZHEIMER’S DISEASE & DEMENTIA and of course... Ligue Alzheimer asbl

  13. Alzheimer Café : Here we answer to everything ! SILENCE No taboo ! Ligue Alzheimer asbl

  14. Alzheimer Café :Key words CO " " 3 COmmunication COnviviality COmpetence Ligue Alzheimer asbl

  15. Alzheimer Café : briefing information Juste like in a sport’s team…, a « coach » shows the way to follow, the aim to reach,… Ligue Alzheimer asbl

  16. Alzheimer Café : knowledge Alzheimer Café company ignorance taboo freedom stigma autonomy loneliness Ligue Alzheimer asbl

  17. Alzheimer Café :which costs ? • EXPENSES: • As low as possible, with optimal quality • Room • Drinks, pastry, napkins, etc… • With prof. group line • 3 hours of preparation time • 3 hours of work time locally • Dispatch of the announcement, invitations away (postage, telephone, email) Ligue Alzheimer asbl

  18. Alzheimer Café :which costs ? (2) • INDIRECT COST: • A lot of time for… • Preparation • Contacts, telephone, emails,… • Information work in the local group • Search for sponsors Ligue Alzheimer asbl

  19. After an Alzheimer Café : Alzheimer Café Liège (Belgium) Ligue Alzheimer asbl

  20. Ligue Alzheimer asbl :Alzheimer Café among others… Ligue Alzheimer asbl

  21. What about a « european Alzheimer Café »? Please come in touch with us !!! Ligue Alzheimer asbl

  22. Ligue Alzheimer asbl Montagne Sainte-Walburge 4bis B-4000 Liège BELGIUM • Tel. & fax : 0032 – 4 – 229.58.10 • E-mail : henry.sabine@skynet.be • Website : www.alzheimer.be www.lademence.be New ! New ! Ligue Alzheimer asbl

More Related